1<!DOCTYPE html> 2<html lang="en" dir="ltr"> 3 <head> 4 <meta charset="utf-8" /> 5<noscript><style>form.antibot > * { display: none !important; } form.antibot noscript { display: block !important; }</style> 6</noscript>
vendor: 63 bytes, line 6
6<script async src="https://www.googletagmanager.com/gtag/js?id=
6G-2744FFKBNM
vendor: 12 bytes, line 6
6"></script>
7<script>window.dataLayer = window.dataLayer || [];function gtag(){dataLayer.push(arguments)};gtag("js", new Date());gtag("set", "developer_id.dMDhkMT", true);gtag("config", "G-2744FFKBNM", {"groups":"default","page_placeholder":"PLACEHOLDER_page_location"});</script>
7 8<meta name="Generator" content="Drupal 10 (https://www.drupal.org)" /> 9<meta name="MobileOptimized" content="width" /> 10<meta name="HandheldFriendly" content="true" /> 11<meta name="viewport" content="width=device-width, initial-scale=1, shrink-to-fit=no" /> 12<meta http-equiv="x-ua-compatible" content="ie=edge" /> 13<link rel="icon" href="/sites/default/files/SickleCell_Head_Pic.png" type="image/png" /> 14 15 <title>SickleInAfrica Working Groups | SickleInAfrica</title> 16 <link rel="stylesheet" media="all" href="/core/modules/system/css/components/align.module.css?thydbl" /> 17<link rel="stylesheet" media="all" href="/core/modules/system/css/components/fieldgroup.module.css?thydbl" /> 18<link rel="stylesheet" media="all" href="/core/modules/system/css/components/container-inline.module.css?thydbl" /> 19<link rel="stylesheet" media="all" href="/core/modules/system/css/components/clearfix.module.css?thydbl" /> 20<link rel="stylesheet" media="all" href="/core/modules/system/css/components/details.module.css?thydbl" /> 21<link rel="stylesheet" media="all" href="/core/modules/system/css/components/hidden.module.css?thydbl" /> 22<link rel="stylesheet" media="all" href="/core/modules/system/css/components/item-list.module.css?thydbl" /> 23<link rel="stylesheet" media="all" href="/core/modules/system/css/components/js.module.css?thydbl" /> 24<link rel="stylesheet" media="all" href="/core/modules/system/css/components/nowrap.module.css?thydbl" /> 25<link rel="stylesheet" media="all" href="/core/modules/system/css/components/position-container.module.css?thydbl" /> 26<link rel="stylesheet" media="all" href="/core/modules/system/css/components/reset-appearance.module.css?thydbl" /> 27<link rel="stylesheet" media="all" href="/core/modules/system/css/components/resize.module.css?thydbl" /> 28<link rel="stylesheet" media="all" href="/core/modules/system/css/components/system-status-counter.css?thydbl" /> 29<link rel="stylesheet" media="all" href="/core/modules/system/css/components/system-status-report-counters.css?thydbl" /> 30<link rel="stylesheet" media="all" href="/core/modules/system/css/components/system-status-report-general-info.css?thydbl" /> 31<link rel="stylesheet" media="all" href="/core/modules/system/css/components/tablesort.module.css?thydbl" /> 32<link rel="stylesheet" media="all" href="/modules/contrib/jquery_ui/assets/vendor/jquery.ui/themes/base/core.css?thydbl" /> 33<link rel="stylesheet" media="all" href="/modules/contrib/jquery_ui/assets/vendor/jquery.ui/themes/base/accordion.css?thydbl" /> 34<link rel="stylesheet" media="all" href="/core/modules/views/css/views.module.css?thydbl" /> 35<link rel="stylesheet" media="all" href="/libraries/bootstrap/css/bootstrap.min.css?thydbl" /> 36<link rel="stylesheet" media="all" href="https://use.fontawesome.com/releases/v6.4.0/css/all.css" /> 37<link rel="stylesheet" media="all" href="https://use.fontawesome.com/releases/v6.4.0/css/v4-shims.css" /> 38<link rel="stylesheet" media="all" href="/modules/contrib/jquery_ui/assets/vendor/jquery.ui/themes/base/theme.css?thydbl" /> 39<link rel="stylesheet" media="all" href="/themes/contrib/bootstrap_barrio/css/components/variables.css?thydbl" /> 40<link rel="stylesheet" media="all" href="/themes/contrib/bootstrap_barrio/css/components/user.css?thydbl" /> 41<link rel="stylesheet" media="all" href="/themes/contrib/bootstrap_barrio/css/components/progress.css?thydbl" /> 42<link rel="stylesheet" media="all" href="//use.fontawesome.com/releases/v5.13.0/css/all.css" /> 43<link rel="stylesheet" media="all" href="/themes/contrib/bootstrap_barrio/css/components/affix.css?thydbl" /> 44<link rel="stylesheet" media="all" href="/themes/contrib/bootstrap_barrio/css/components/book.css?thydbl" /> 45<link rel="stylesheet" media="all" href="/themes/contrib/bootstrap_barrio/css/components/contextual.css?thydbl" /> 46<link rel="stylesheet" media="all" href="/themes/contrib/bootstrap_barrio/css/components/feed-icon.css?thydbl" /> 47<link rel="stylesheet" media="all" href="/themes/contrib/bootstrap_barrio/css/components/field.css?thydbl" /> 48<link rel="stylesheet" media="all" href="/themes/contrib/bootstrap_barrio/css/components/header.css?thydbl" /> 49<link rel="stylesheet" media="all" href="/themes/contrib/bootstrap_barrio/css/components/help.css?thydbl" /> 50<link rel="stylesheet" media="all" href="/themes/contrib/bootstrap_barrio/css/components/icons.css?thydbl" /> 51<link rel="stylesheet" media="all" href="/themes/contrib/bootstrap_barrio/css/components/image-button.css?thydbl" /> 52<link rel="stylesheet" media="all" href="/themes/contrib/bootstrap_barrio/css/components/item-list.css?thydbl" /> 53<link rel="stylesheet" media="all" href="/themes/contrib/bootstrap_barrio/css/components/list-group.css?thydbl" /> 54<link rel="stylesheet" media="all" href="/themes/contrib/bootstrap_barrio/css/components/media.css?thydbl" /> 55<link rel="stylesheet" media="all" href="/themes/contrib/bootstrap_barrio/css/components/page.css?thydbl" /> 56<link rel="stylesheet" media="all" href="/themes/contrib/bootstrap_barrio/css/components/search-form.css?thydbl" /> 57<link rel="stylesheet" media="all" href="/themes/contrib/bootstrap_barrio/css/components/shortcut.css?thydbl" /> 58<link rel="stylesheet" media="all" href="/themes/contrib/bootstrap_barrio/css/components/sidebar.css?thydbl" /> 59<link rel="stylesheet" media="all" href="/themes/contrib/bootstrap_barrio/css/components/site-footer.css?thydbl" /> 60<link rel="stylesheet" media="all" href="/themes/contrib/bootstrap_barrio/css/components/skip-link.css?thydbl" /> 61<link rel="stylesheet" media="all" href="/themes/contrib/bootstrap_barrio/css/components/table.css?thydbl" /> 62<link rel="stylesheet" media="all" href="/themes/contrib/bootstrap_barrio/css/components/tabledrag.css?thydbl" /> 63<link rel="stylesheet" media="all" href="/themes/contrib/bootstrap_barrio/css/components/tableselect.css?thydbl" /> 64<link rel="stylesheet" media="all" href="/themes/contrib/bootstrap_barrio/css/components/tablesort-indicator.css?thydbl" /> 65<link rel="stylesheet" media="all" href="/themes/contrib/bootstrap_barrio/css/components/ui.widget.css?thydbl" /> 66<link rel="stylesheet" media="all" href="/themes/contrib/bootstrap_barrio/css/components/tabs.css?thydbl" /> 67<link rel="stylesheet" media="all" href="/themes/contrib/bootstrap_barrio/css/components/toolbar.css?thydbl" /> 68<link rel="stylesheet" media="all" href="/themes/contrib/bootstrap_barrio/css/components/vertical-tabs.css?thydbl" /> 69<link rel="stylesheet" media="all" href="/themes/contrib/bootstrap_barrio/css/components/views.css?thydbl" /> 70<link rel="stylesheet" media="all" href="/themes/contrib/bootstrap_barrio/css/components/webform.css?thydbl" /> 71<link rel="stylesheet" media="all" href="/themes/contrib/bootstrap_barrio/css/components/ui-dialog.css?thydbl" /> 72<link rel="stylesheet" media="all" href="/themes/contrib/bootstrap_barrio/css/colors/messages/messages-white.css?thydbl" /> 73<link rel="stylesheet" media="all" href="/themes/contrib/bootstrap_barrio/fonts/roboto.css?thydbl" /> 74<link rel="stylesheet" media="all" href="//fonts.googleapis.com/css?family=Roboto|Roboto+Condensed:700" /> 75<link rel="stylesheet" media="all" href="/core/../themes/contrib/bootstrap_barrio/components/menu_columns/menu_columns.css?thydbl" /> 76<link rel="stylesheet" media="all" href="/core/../themes/contrib/bootstrap_barrio/components/menu_main/menu_main.css?thydbl" /> 77<link rel="stylesheet" media="all" href="//cdn.jsdelivr.net/npm/[email protected]/dist/css/bootstrap.min.css" /> 78<link rel="stylesheet" media="all" href="/themes/custom/sickleinafrica/css/style.css?thydbl" /> 79<link rel="stylesheet" media="all" href="/sites/default/files/color/sickleinafrica-ffd47ea4/colors.css?thydbl" /> 80<link rel="stylesheet" media="print" href="/themes/contrib/bootstrap_barrio/css/print.css?thydbl" /> 81<link rel="stylesheet" media="all" href="/themes/contrib/bootstrap_barrio/css/components/navigation.css?thydbl" /> 82<link rel="stylesheet" media="all" href="/sites/default/files/asset_injector/css/sadacc_1st_2nd_sidebars-759736c775c536d8a2ed16356ecf02f6.css?thydbl" /> 83<link rel="stylesheet" media="all" href="/sites/default/files/asset_injector/css/sadacc_a_tag-072219274c06cb01f98260fdf75b3686.css?thydbl" /> 84<link rel="stylesheet" media="all" href="/sites/default/files/asset_injector/css/sadacc_background-5d21cfc10afd91346970c1be4f3ef775.css?thydbl" /> 85<link rel="stylesheet" media="all" href="/sites/default/files/asset_injector/css/sadacc_block_background-73f6d05a957729dd7b319aba5eaa708f.css?thydbl" /> 86<link rel="stylesheet" media="all" href="/sites/default/files/asset_injector/css/sadacc_body_margin-fc4db87ab36bb0fdf046b19809896685.css?thydbl" /> 87<link rel="stylesheet" media="all" href="/sites/default/files/asset_injector/css/sadacc_container_
87class-196a61b6ef0fab92bc6f245983ec8d6c.css?thydbl" /> 88<link rel="stylesheet" media="all" href="/sites/default/files/asset_injector/css/sadacc_custom_bootstrap-f5ff31aa4a88bb15d7ec2d205ef0e20f.css?thydbl" /> 89<link rel="stylesheet" media="all" href="/sites/default/files/asset_injector/css/sadacc_custom_width_10_15_percent-267a52525058f55f3551951de3856ad4.css?thydbl" /> 90<link rel="stylesheet" media="all" href="/sites/default/files/asset_injector/css/sadacc_drupal_classes-6b02a1f3569e8e3968751d5c26aeef5c.css?thydbl" /> 91<link rel="stylesheet" media="all" href="/sites/default/files/asset_injector/css/sadacc_fieldset_and_legend-bbcae51fbd4d1e64f72799cc3df00908.css?thydbl" /> 92<link rel="stylesheet" media="all" href="/sites/default/files/asset_injector/css/sadacc_flexslider-e70bda62fd03ade5e23bc4bd28631c57.css?thydbl" /> 93<link rel="stylesheet" media="all" href="/sites/default/files/asset_injector/css/sadacc_footer-7deb96cffc58019e409c151d1757fdd6.css?thydbl" /> 94<link rel="stylesheet" media="all" href="/sites/default/files/asset_injector/css/sadacc_headers_h1_h2_h3_h4_-df91e433c0edfa736b8f9b9963cd968e.css?thydbl" /> 95<link rel="stylesheet" media="all" href="/sites/default/files/asset_injector/css/sadacc_img_thumbnail_height-150fc6038880f1f2ec6437efdbb80031.css?thydbl" /> 96<link rel="stylesheet" media="all" href="/sites/default/files/asset_injector/css/sadacc_logo-3598e8e5f9ab8f5b475419f463a4c80a.css?thydbl" /> 97<link rel="stylesheet" media="all" href="/sites/default/files/asset_injector/css/sadacc_main_content_section-599ad41658208dcce51401b0aca33bb1.css?thydbl" /> 98<link rel="stylesheet" media="all" href="/sites/default/files/asset_injector/css/sadacc_main_menu-067bdaa26e85f50e2fa7b69e05d90929.css?thydbl" /> 99<link rel="stylesheet" media="all" href="/sites/default/files/asset_injector/css/sadacc_people_view_accordion-fcbd930f6977a263d5eef71775700ee3.css?thydbl" /> 100<link rel="stylesheet" media="all" href="/sites/default/files/asset_injector/css/sadacc_second_sidebar-095df2d04e60c56a4066f931ad5dad4c.css?thydbl" /> 101<link rel="stylesheet" media="all" href="/sites/default/files/asset_injector/css/sadacc_slideshow_p-54d97f8289af6794ef8842076f1efebf.css?thydbl" /> 102<link rel="stylesheet" media="all" href="/sites/default/files/asset_injector/css/sadacc_table_header_th-f3ce206a57bfd8572e5047eca87539ad.css?thydbl" /> 103<link rel="stylesheet" media="all" href="/sites/default/files/asset_injector/css/sadacc_tables-c4a3bc3b532f1588198ead9d2098d0b2.css?thydbl" /> 104<link rel="stylesheet" media="all" href="/sites/default/files/asset_injector/css/sadacc_to_be_hidden_for_anonymous-a5fb3d6dabeccb82b732c2cbb2c988a5.css?thydbl" /> 105<link rel="stylesheet" media="all" href="/sites/default/files/asset_injector/css/sadacc_to_be_shown_only_to_administrator-7cd3f57b8685b60f375e13e3157a3196.css?thydbl" /> 106<link rel="stylesheet" media="all" href="/sites/default/files/asset_injector/css/sadacc_ul_li_for_views_multiple_dates-e16f314197eeffc76581c8426d38f34b.css?thydbl" /> 107 108 109 </head> 110 <body class="layout-no-sidebars has-featured-top page-view-sickleinafrica-working-group path-sia-working-groups"> 111 <a href="#main-content" class="visually-hidden-focusable"> 112 Skip to main content 113 </a> 114 115 <div class="dialog-off-canvas-main-canvas" data-off-canvas-main-canvas> 116 117<div id="page-wrapper"> 118 <div id="page"> 119 <header id="header" class="header" role="banner" aria-label="Site header"> 120 <nav class="navbar sadacc_main_menu affix fixed-top navbar-expand-lg" id="navbar-main" data-toggle="affix"> 121 <div class="container"> 122 <a href="/" title="Home" rel="home" class="navbar-brand"> 123 <img src="/sites/default/files/SickleCell_Head_Pic.png" alt="Home" class="img-fluid d-inline-block align-top" /> 124 125 </a> 126 127 128 <button class="navbar-toggler collapsed" type="button" data-bs-toggle="collapse" data-bs-target="#CollapsingNavbar" aria-controls="CollapsingNavbar" aria-expanded="false" aria-label="Toggle navigation"><span class="navbar-toggler-icon"></span></button> 129 <div class="collapse navbar-collapse justify-content-end" id="CollapsingNavbar"> 130 <section class="bg-white region region-primary-menu"> 131 <nav role="navigation" aria-labelledby="block-sickleinafrica-main-menu-menu" id="block-sickleinafrica-main-menu" class="block block-menu navigation menu--main"> 132 133 <h2 class="visually-hidden" id="block-sickleinafrica-main-menu-menu">Main navigation</h2> 134 135 136 137 <ul class="clearfix nav navbar-nav" data-component-id="bootstrap_barrio:menu_main"> 138 <li class="nav-item"> 139 <a href="/" class="nav-link nav-link--" data-drupal-link-system-path="<front>">Home</a> 140 </li> 141 <li class="nav-item"> 142 <a href="/about-page" class="nav-link nav-link--about-page" data-drupal-link-system-path="about-page">About</a> 143 </li> 144 <li class="nav-item"> 145 <a href="/events-page" class="nav-link nav-link--events-page" data-drupal-link-system-path="events-page">Events</a> 146 </li> 147 <li class="nav-item active"> 148 <a href="/sia-working-groups" class="nav-link active nav-link--sia-working-groups is-active" data-drupal-link-system-path="sia-working-groups" aria-current="page">Working Groups</a> 149 </li> 150 <li class="nav-item"> 151 <a href="/sia-resources" class="nav-link nav-link--sia-resources" data-drupal-link-system-path="sia-resources">Resources</a> 152 </li> 153 <li class="nav-item"> 154 <a href="/scd-registeries-map" class="nav-link nav-link--scd-registeries-map" data-drupal-link-system-path="scd-registeries-map">SCD Registeries</a> 155 </li> 156 </ul> 157 158 159 160 161 </nav> 162<nav role="navigation" aria-labelledby="block-sickleinafrica-account-menu-menu" id="block-sickleinafrica-account-menu" class="block block-menu navigation menu--account"> 163 164 <h2 class="visually-hidden" id="block-sickleinafrica-account-menu-menu">User account menu</h2> 165 166 167 168 <ul class="clearfix nav flex-row" data-component-id="bootstrap_barrio:menu_columns"> 169 <li class="nav-item"> 170 <a href="/helpdesk" class="nav-link nav-link--helpdesk">Helpdesk</a> 171 </li> 172 <li class="nav-item"> 173 <a href="/user/login?current=/sia-working-groups" class="nav-link nav-link--user-login" data-drupal-link-system-path="user/login">Log in</a> 174 </li> 175 </ul> 176 177 178 179 180 </nav> 181 182 </section> 183 184 </div> 185 </div> 186 </nav> 187 </header> 188 <div class="featured-top"> 189 <aside class="featured-top__inner section container-fluid clearfix" role="complementary"> 190 <div data-drupal-messages-fallback class="hidden"></div> 191 192 193 </aside> 194 </div> 195 <div id="main-wrapper" class="layout-main-wrapper clearfix"> 196 <div id="main" class="container-fluid"> 197 198 <div class="row row-offcanvas row-offcanvas-left clearfix"> 199 <main class="main-content col" id="content" role="main"> 200 <section class="section"> 201 <a href="#main-content" id="main-content" tabindex="-1"></a>
202 <div id="block-sickleinafrica-content" class="block block-system block-system-main-block"> 203 204 205 <div class="content"> 206 <div class="views-element-container"><div class="view view-sickleinafrica-working-group view-id-sickleinafrica_working_group view-display-id-page_1 js-view-dom-id-5880db4288f0116a367a75054b079716714684f48b192e525688614941d523d1"> 207 208 209 <div class="view-header"> 210 <p>Several <em>Working Groups</em> (WG) exist that focus on the relevant areas specific to Sickle Cell Disease. The tabs below highlight the work and outcomes for these <em>Working Groups</em>.</p> 211 </div> 212 213 <div class="view-content row"> 214 <div class="views-row"> 215 <div class="views-row"> 216 <div class="views-field views-field-title views-accordion-header js-views-accordion-header-5880db4288f0116a367a75054b079716714684f48b192e525688614941d523d1"><span class="field-content">Data Management</span></div><div class="views-field views-field-body"><div class="field-content"><p>The Data Management Working Group aims to facilitate capturing and depositing of data from research participants into a centralized secure database. Data will be standardized and will be easy transform for analyses and for use in collaborative research. </p> 217<p><br><strong>Deliverables:</strong></p> 218<ul> 219<li>Working Group Meets Monthly</li> 220<li>System Architecture is approved by SC</li> 221<li>RedCap Is Functional at all SPARCO sites</li> 222<li>SPARCO Research Data Elements </li> 223<li>SCD Standardized REDCap Data Elements are available publicly in REDCaP and SADaCC website</li> 224<li>Tracking of Recruitment at sites</li> 225<li>SOPs for data collection, management, security and sharing are approved by SC and accessible via the SADaCC website</li> 226<li>Site Visits Are Conducted by SADaCC & SPARCO Hub</li> 227<li>Data Quality and Assurance system is functional</li> 228<li>Technical HelpDesk for the sites is functional</li> 229<li>A centralized mySQL hemoglobinopathy database is live on the Sickle In Africa website</li> 230</ul> 231<p><strong>Progress to date:</strong></p> 232<ul> 233<li>Draft Standardized data dictionary</li> 234<li>Comparison of existing data elements from SPARCO sites and PhenX</li> 235<li>Draft System Architecture</li> 236<li>REDCap database and data capturing</li> 237</ul> 238<p><strong>Chair:</strong> Prof. Raphael Sangeda</p> 239<p><strong>Members:</strong> Prof. Ambroise Wonkam, Dr. Victoria Nembaware, Prof. Nicola Mulder, Ms. Annemie Stewart, Mr. Wilson Mupfururirwa, Ms. Irene Kyomugisha, Mr. Mario Jonas, Dr. Jack Morrice, Prof. Julie Makani, Dr. Irene Minja, Prof. Raphael Sangeda, Upendo Masamu, Dr. David Nana Adjei, Mr. Isaac Nyanor, Prof. Obiageli Nnodu, Mr. Reuben Chianumba, Mr. Olumide Owolabi, Dr. Ibrahima Keita, Mr. Moussa Coulibaly, Mr. Daniel Kandonga, Mr. Michael Msangawale, Dr. Agnes Jonathan, Dr. Daudi Jjingo, Mile Nsubuga, Takudzwa Mtisi, Dr. Francis Simusika</p> 240<p><strong>Mailing list:</strong> <em>sparco_database_research_at_lists.uct.ac.za</em></p> 241<p><a class="button2" href="/form/mailing-list-sign-up?mlist=sparco_database_research@lists.uct.ac.za&wkgpg=Data%20Management">Sign up to a Mailing list</a></p> 242</div></div> 243 </div> 244 <div class="views-row"> 245 <div class="views-field views-field-title views-accordion-header js-views-accordion-header-5880db4288f0116a367a75054b079716714684f48b192e525688614941d523d1"><span class="field-content">Research</span></div><div class="views-field views-field-body"><div class="field-content"><p>The Research working group aims to coordinate development of research proposals and ethical research procedures within SPARCO and SADaCC. <br> <br><strong>Deliverables:</strong></p> 246<ul> 247<li>Working group meets monthly</li> 248<li>Ethical, legal and social issues (ELSI) guidelines and templates approved by Steering Committee</li> 249<li>Retrospective data analyses report</li> 250<li>Approved Ethics Certificates and Data Sharing Plans </li> 251<li>Research Studies - Plans</li> 252<li>Publications of pilot studies and comparative studies</li> 253</ul> 254<p><strong>Progress: </strong></p> 255<ul> 256<li>Ethics and Consenting Guidelines & Templates. </li> 257<li>Draft of the retrospective research proposal </li> 258</ul> 259<p><strong>Chair: </strong>Prof. Julie Makani</p> 260<p><strong>Members: </strong>Prof. Ambroise Wonkam, Prof. Nicola Mulder, Andre Pascal, Dr. Victoria Nembaware, Dr. Jack Morrice, Dr. Khuthala Mnika, Valentina Bitongui, Mr. Mario Jonas, Prof. Julie Makani, Dr. Irene Minja, Ms. Malula Nkanyemka, Dr. Siana Nkaya, Ms. Daima Bukini, Upendo Masamu, Prof. Fred Stephen Sarfo, Prof. Solomon Ofori-Acquah, Dr Samuel Blay Nguah, Prof. Obiageli Nnodu, Dr. Emmanuel Peprah, Dr Echezona Ezeanolue, Prof. Aldiouma Guindo, Yeya dit Sadio Sarro, Dr. Paschal Ruggajo, Dr. Agnes Jonathan, Prof Grace Ndeezi, Dr. Ruth Namazzi, Prof Robert Opoka, Prof. Collen Masimirembwa, Dr. Catherine Chunda-Liyoka, Prof. Uma Athale</p> 261<p><strong>Mailing list: </strong><em>sparco_database_research_at_lists.uct.ac.za</em></p> 262<p><a class="button2" href="/form/mailing-list-sign-up?mlist=sparco_database_research@lists.uct.ac.za&wkgpg=Research">Sign up to a Mailing list</a></p> 263</div></div> 264 </div> 265 <div class="views-row"> 266 <div class="views-field views-field-title views-accordion-header js-views-accordion-header-5880db4288f0116a367a75054b079716714684f48b192e525688614941d523d1"><span class="field-content">SCD Ontology</span></div><div class="views-field views-field-body"><div class="field-content"><p>The Sickle Cell Disease Ontology (SCDO) project is a collaboration between H3ABioNet (Pan African Bioinformatics Network), SPAN, SADaCC and SPARCO. The SCDO is currently under development (click here to view a draft)and its purpose is to:<br> 267establish community standardized SCD terms and descriptions establish canonical and hierarchical representation of knowledge on SCD links to other ontologies and bodies of work such as DO, PhenX MeSH, ICD, NCIâs thesaurus, SNOMED and OMIM.<br> 268Once complete, we anticipate that the ontology will:</p> 269<ul> 270<li>be the most comprehensive collection of knowledge in the SCD</li> 271<li>facilitate exploration of new scientific questions and ideas.</li> 272<li>facilitate seamless data sharing and collaborations including meta-analysis within the SDC community.</li> 273<li>support the building of databasing and clinical informatics in SCD</li> 274</ul> 275<p><strong> Deliverables </strong></p> 276<ul> 277<li>SCDO Version 1 Content is Finalized </li> 278<li>The SCDO Ontology comply to OBO rules</li> 279<li>Monthly SCDO Meetings are conducted</li> 280<li>Curation pipeline is available for download</li> 281<li>Web-portal content is live</li> 282<li>SCDO Workshop Agenda & Report</li> 283<li>Cross-consortia research and publications</li> 284</ul> 285<p><strong>Progress: </strong></p> 286<p><a href="http://scdontology.h3abionet.org/">Read details from the SCDO website</a><br> 287 <br> 288<strong>Chairs:</strong> Professor Nicola Mulder and Professor Ambroise Wonkam<br> 289<a href="http://scdontology.h3abionet.org/">Read details from the SCDO website</a><br> 290 </p> 291</div></div> 292 </div> 293 <div class="views-row"> 294 <div class="views-field views-field-title views-accordion-header js-views-accordion-header-5880db4288f0116a367a75054b079716714684f48b192e525688614941d523d1"><span class="field-content">Skills Development</span></div><div class="views-field views-field-body"><div class="field-content"><p>This working aims to coordinate training and skills development across SPARCO and SADaCC for the members of the consortium as well as SPAN.</p> 295<p><strong>Deliverables:</strong></p> 296<ul> 297<li>Working group meets monthly</li> 298<li>External training opportunities are available on the Sickle In Africa/SADaCC website</li> 299<li>List of training priorities is loaded onto SADaCC website</li> 300<li>Database of existing training opportunities to collaborate with</li> 301<li>New training curricula are designed and implemented</li> 302<li>Professional development training is conducted</li> 303<li>Public engagement reports are made publicly available</li> 304<li>Webinars are conducted monthly</li> 305</ul> 306<p><strong>Progress to date:</strong></p> 307<ul> 308<li>List of training priorities</li> 309<li>Introduction to Data Management Training Curriculum</li> 310<li>Introduction to Data Management Workshop Plan</li> 311<li>Medical Genetics and Genetic Counselling Training Plan</li> 312</ul> 313<p><strong>Chair:</strong> Prof. Obiageli Nnodu</p> 314<p><strong>Members:</strong> Prof. Ambroise Wonkam, Prof. Nicola Mulder, Dr. Victoria Nembaware, Dr. Jack Morrice, Ms. Paidamoyo Bodzo, Prof. Julie Makani, Dr. Irene Minja, Ms. Josephine Mgaya, Dr Amma Benneh-Akwasi Kuma, Prof Alex Osei-Akoto, Prof. Obiageli Nnodu, Dr. Maxwell Nwegbu, Dr. Olugbenga Ofakunri, Prof. Aldiouma Guindo, Yeya dit Sadio Sarro, Dr. Irene Kida Minja, Dr. Agnes Jonathan, Dr Ruth Namazzi, Dr D. Munube, Dr. Patience Kuona, Jombo Namushi</p> 315<p><strong>Mailing list:</strong> <em>sparco_skills_standards_at_lists.uct.ac.za</em></p> 316<p><a class="button2" href="/form/mailing-list-sign-up?mlist=sparco_skills_standards@lists.uct.ac.za&wkgpg=Skills%20Development">Sign up to a Mailing list</a></p> 317</div></div> 318 </div> 319 <div class="views-row"> 320 <div class="views-field views-field-title views-accordion-header js-views-accordion-header-5880db4288f0116a367a75054b079716714684f48b192e525688614941d523d1"><span class="field-content">Standards of Care</span></div><div class="views-field views-field-body"><div class="field-content"><p>The Standards of Care Working Group was established to develop new standards of care guidelines for sickle cell disease by adapting existing guidelines. <br> <br><strong>Deliverables:</strong></p> 321<ul> 322<li>Working group meets monthly</li> 323<li>Database of SCD management guidelines</li> 324<li>SCDO Ontology Updated</li> 325<li>Review Methods are in Place</li> 326<li>Common Guidelines for Management of SSA is approved by SC</li> 327<li>Minimum standards for Management of SSA is approved by SC</li> 328<li>
328mHealth standards of care tool is in place</li> 329<li>Evaluation Report of the mHealth pilot is published</li> 330<li>IRB Approvals are in place</li> 331<li>Evaluation Report of the mHealth pilot is published</li> 332<li>Minimum standards of Guidelines are made available via the internet</li> 333<li>Signed MOUs with the Ministries of Health</li> 334<li>SPAN sites adopting Guidelines </li> 335<li>Online Portal to track changes</li> 336</ul> 337<p><strong>Progress: </strong></p> 338<ul> 339<li>Ongoing comparative analyses of existing guidelines </li> 340</ul> 341<p><strong>Chair:</strong> Professor Kwaku Ohene-Frempong</p> 342<p><strong>Members:</strong> Prof. Ambroise Wonkam, Dr. Kambe Banda, Jade Hotchkiss, Dr. Victoria Nembaware, Mr. Wilson Mupfururirwa, Prof. Julie Makani, Dr. Irene Minja, Ms. Josephine Mgaya, Dr. Vivian Paintsil, Dr Eunice Agyeman Ahmed, Prof. Obiageli Nnodu, Hezekiah Isa, Prof. Uche Nnebe Agumadu, Boubacari Ali Toure, Dr. Mariam Kanta, Sekou Kene, Dr. Mwashungi Ally, Dr. Agnes Jonathan, Dr. Ruth Namazzi, Dr D. Munube, Prof. Heather Hume, Dr. Pamela Gorejena-Chidawanyika, Dr. Catherine Chunda-Liyoka</p> 343<p><strong>Mailing list:</strong> <em>sparco_skills_standards_at_lists.uct.ac.za</em></p> 344<p><a class="button2" href="/form/mailing-list-sign-up?mlist=sparco_skills_standards@lists.uct.ac.za&wkgpg=Standards%20of%20Care">Sign up to a Mailing list</a></p> 345</div></div> 346 </div> 347 348 </div> 349 350 </div> 351 352 353 </div> 354</div> 355 356 </div> 357 </div> 358 359 360 </section> 361 </main> 362 </div> 363 </div> 364 </div> 365 <footer class="site-footer"> 366 <div class="container-fluid"> 367 <div class="site-footer__bottom"> 368 <section class="row region region-footer-fifth"> 369 <div id="block-footercontactus" class="block-content-basic block block-block-content block-block-contentb30f97fe-c819-44bc-b548-dd9530e6e554"> 370 371 372 <div class="content"> 373 374 <div class="clearfix text-formatted field field--name-body field--type-text-with-summary field--label-hidden field__item"><div class="container"> 375<div class="row"> 376<div class="col-md-5"><img class="footer-logo d-inline-block align-top" src="/sites/default/files/SickleCell_Head_Pic.png" alt="SADaCC logo" width="230" height="230"></div> 377<div class="row col-md-7"> 378<div class="col-md-4"> 379<h6 class="text-white">RESEARCH</h6> 380<ul> 381<li>Publications</li> 382<li><a class="text-decoration-none" href="/filedepot-folder/37726">Grant Writing</a></li> 383<li><a class="text-decoration-none" href="/SIA_data_elements">Data Elements</a></li> 384<li><a class="text-decoration-none" href="/sops-booklet">SOPs</a></li> 385<li>Training</li> 386</ul> 387</div> 388<div class="col-md-4"> 389<h6 class="text-white">PARTNERS</h6> 390<ul> 391<li>SADaCC</li> 392<li>SPARCo</li> 393<li>SPAN</li> 394</ul> 395</div> 396<div class="col-md-4"> 397<h6 class="text-white">CONTACT US</h6> 398<p>SickleInAfrica<br>University of Cape Town<br>Republic of South Africa<br>Tel: (+27) 21 406-6995<br>Email:</p> 399</div> 400</div> 401</div> 402</div> 403</div> 404 405 </div> 406 </div> 407 408 </section> 409 410 </div> 411 </div> 412 </footer> 413 </div> 414</div> 415 416 </div> 417 418 419
419<script type="application/json" data-drupal-selector="drupal-settings-json">{"path":{"baseUrl":"\/","pathPrefix":"","currentPath":"sia-working-groups","currentPathIsAdmin":false,"isFront":false,"currentLanguage":"en"},"pluralDelimiter":"\u0003","suppressDeprecationErrors":true,"google_analytics":{"account":"G-2744FFKBNM","trackOutbound":true,"trackMailto":true,"trackTel":true,"trackDownload":true,"trackDownloadExtensions":"7z|aac|arc|arj|asf|asx|avi|bin|csv|doc(x|m)?|dot(x|m)?|exe|flv|gif|gz|gzip|hqx|jar|jpe?g|js|mp(2|3|4|e?g)|mov(ie)?|msi|msp|pdf|phps|png|ppt(x|m)?|pot(x|m)?|pps(x|m)?|ppam|sld(x|m)?|thmx|qtm?|ra(m|r)?|sea|sit|tar|tgz|torrent|txt|wav|wma|wmv|wpd|xls(x|m|b)?|xlt(x|m)|xlam|xml|z|zip"},"views_accordion":{"5880db4288f0116a367a75054b079716714684f48b192e525688614941d523d1":{"usegroupheader":false,"collapsible":1,"rowstartopen":false,"animated":false,"duration":false,"heightStyle":"auto","event":"click","useHeaderIcons":1,"iconHeader":"ui-icon-triangle-1-e","iconActiveHeader":"ui-icon-triangle-1-s","display":".js-view-dom-id-5880db4288f0116a367a75054b079716714684f48b192e525688614941d523d1","header":".js-views-accordion-header-5880db4288f0116a367a75054b079716714684f48b192e525688614941d523d1"}},"user":{"uid":0,"permissionsHash":"7370c0717b24ac9a0b9c46a5a90d4d99fa7ebded1c8fdcf23168e02ab8ad87e9"}}</script>
vendor: 1 bytes, line 419
419
420<script src="/core/assets/vendor/jquery/jquery.min.js?v=3.7.1"></script>
vendor: 1 bytes, line 420
420
421<script src="/core/assets/vendor/once/once.min.js?v=1.0.1"></script>
vendor: 1 bytes, line 421
421
422<script src="/core/misc/drupalSettingsLoader.js?v=10.6.10"></script>
vendor: 1 bytes, line 422
422
423<script src="/core/misc/drupal.js?v=10.6.10"></script>
vendor: 1 bytes, line 423
423
424<script src="/core/misc/drupal.init.js?v=10.6.10"></script>
vendor: 1 bytes, line 424
424
425<script src="/modules/contrib/jquery_ui/assets/vendor/jquery.ui/ui/version-min.js?v=1.13.2"></script>
vendor: 1 bytes, line 425
425
426<script src="/modules/contrib/jquery_ui/assets/vendor/jquery.ui/ui/keycode-min.js?v=1.13.2"></script>
vendor: 1 bytes, line 426
426
427<script src="/modules/contrib/jquery_ui/assets/vendor/jquery.ui/ui/unique-id-min.js?v=1.13.2"></script>
vendor: 1 bytes, line 427
427
428<script src="/modules/contrib/jquery_ui/assets/vendor/jquery.ui/ui/widget-min.js?v=1.13.2"></script>
vendor: 1 bytes, line 428
428
429<script src="/modules/contrib/jquery_ui/assets/vendor/jquery.ui/ui/widgets/accordion-min.js?v=1.13.2"></script>
vendor: 1 bytes, line 429
429
430<script src="/themes/contrib/bootstrap_barrio/js/affix.js?v=10.6.10"></script>
vendor: 1 bytes, line 430
430
431<script src="/themes/contrib/bootstrap_barrio/js/barrio.js?v=10.6.10"></script>
vendor: 1 bytes, line 431
431
432<script src="/libraries/bootstrap/js/bootstrap.min.js?thydbl"></script>
vendor: 1 bytes, line 432
432
433<script src="/modules/contrib/google_analytics/js/google_analytics.js?v=10.6.10"></script>
vendor: 1 bytes, line 433
433
434<script src="//cdn.jsdelivr.net/npm/[email protected]/dist/js/bootstrap.bundle.min.js"></script>
vendor: 1 bytes, line 434
434
435<script src="/themes/custom/sickleinafrica/js/global.js?v=10.6.10"></script>
vendor: 1 bytes, line 435
435
436<script src="/modules/contrib/views_accordion/js/views-accordion.js?thydbl"></script>
436 437 438 </body> 439</html>
Line numbers count LF bytes from the start of the resource, as the search results do. Vendor segments are library code the classifier recognised; they are stored but not indexed. Bytes are shown as Latin1 characters, one per byte.