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1<meta name="next-size-adjust" content=""/><title>LuminaRare â Iluminando Jornadas Raras</title><meta name="description" content="Plataforma educativa de conscientização sobre doenças raras. Informação acessÃvel, acolhimento, orientação e rede de apoio."/><meta name="author" content="Equipe LuminaRare"/><meta name="keywords" content="doenças raras,saúde,educação em saúde,conscientização,pacientes,rede de apoio,doenças genéticas,assistente IA,LuminaRare"/><meta property="og:title" content="LuminaRare â Iluminando Jornadas Raras"/><meta property="og:description" content="Informação acessÃvel, acolhimento e conscientização sobre doenças raras."/><meta property="og:locale" content="pt_BR"/><meta property="og:type" content="website"/><meta name="twitter:card" content="summary"/><meta name="twitter:title" content="LuminaRare â Iluminando Jornadas Raras"/><meta name="twitter:description" content="Informação acessÃvel, acolhimento e conscientização sobre doenças raras."/>
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1</head><body class="min-h-screen flex flex-col bg-slate-50 text-slate-900 antialiased"><div hidden=""><!--$--><!--/$--></div><main class="min-h-screen bg-gradient-to-b from-slate-50 via-white to-slate-50bg-gradient-to-b from-violet-100 via-violet-50 to-violet-100 relative overflow-hidden"><header class="sticky top-0 z-50 w-full transition-all duration-300 bg-white border-b border-slate-100"><div class="max-w-7xl mx-auto px-6 py-5 flex items-center justify-between"><a class="flex items-center gap-3" href="/"><div class="w-10 h-10 rounded-2xl bg-gradient-to-br from-indigo-700 to-violet-500 flex items-center justify-center shadow-lg shadow-indigo-200"><svg width="18" height="18" viewBox="0 0 24 24" fill="none"><path d="M12 2L15.09 8.26L22 9.27L17 14.14L18.18 21.02L12 17.77L5.82 21.02L7 14.14L2 9.27L8.91 8.26L12 2Z" fill="white" stroke="white" stroke-width="1" stroke-linecap="round" stroke-linejoin="round"></path></svg></div><div class="flex flex-col"><span class="text-indigo-700 font-bold text-xl leading-none">LuminaRare</span><span class="text-slate-400 text-[10px] leading-none mt-1">Iluminando jornadas raras</span></div></a><nav class="hidden md:flex items-center gap-2 bg-slate-50 border border-slate-100 rounded-full p-1"><a class="px-5 py-2 rounded-full text-sm font-medium text-slate-600 hover:bg-white hover:text-indigo-700 transition-all" href="/biblioteca">Doenças</a><a class="px-5 py-2 rounded-full text-sm font-medium text-slate-600 hover:bg-white hover:text-indigo-700 transition-all" href="/chatbot">Assistente IA</a><a class="px-5 py-2 rounded-full text-sm font-medium text-slate-600 hover:bg-white hover:text-indigo-700 transition-all" href="/rede-de-apoio">Rede de Apoio</a></nav><div class="hidden md:flex items-center gap-3"><a class="text-indigo-700 text-sm font-medium px-4 py-2 rounded-xl hover:bg-violet-50 transition-colors" href="/chatbot">Tire suas dúvidas</a><a target="_blank" rel="noopener noreferrer" class="bg-gradient-to-r from-indigo-700 to-violet-500 text-white px-6 py-3 rounded-2xl text-sm font-semibold shadow-lg shadow-indigo-200 hover:scale-105 transition-all duration-300" href="https://forms.gle/R53NTTgoSU9L5xd29">Iniciar Jornada</a></div><button class="md:hidden text-slate-500 hover:text-indigo-700 transition-colors" aria-label="Abrir menu" aria-expanded="false"><svg width="24" height="24" fill="none" stroke="currentColor" stroke-width="2" viewBox="0 0 24 24"><path d="M4 6H20M4 12H20M4 18H20" stroke-linecap="round"></path></svg></button></div></header><section class="py-16 px-6"><div class="max-w-7xl mx-auto flex flex-col gap-10"><div class="text-center flex flex-col gap-3"><span class="bg-[#EDE9FE] text-[#4338CA] text-sm font-medium px-4 py-1 rounded-full w-fit mx-auto">Rede de apoio</span><h1 class="text-4xl md:text-5xl font-bold text-slate-900">Rede Nacional de Apoio</h1><p class="text-slate-600 text-lg max-w-2xl mx-auto">Hospitais, associações e centros especializados em doenças raras para ajudar pacientes, familiares e cuidadores em todo o Brasil.</p><p class="text-xs text-slate-600 mt-1"> As informações de contato podem estar sujeitas a alterações. Confirme os dados diretamente no site de cada instituição.</p></div><div class="rounded-3xl overflow-hidden border border-slate-200 shadow-sm bg-white"><!--$!--><template data-dgst="BAILOUT_TO_CLIENT_SIDE_RENDERING"></template><!--/$--></div><div class="flex gap-2 flex-wrap justify-center"><button aria-pressed="true" class="px-4 py-2 rounded-full text-sm font-medium transition-all bg-[#4338CA] text-white shadow-md">Todos</button><button aria-pressed="false" class="px-4 py-2 rounded-full text-sm font-medium transition-all bg-white border border-[#E2E8F0] text-[#475569] hover:border-[#4338CA] hover:text-[#4338CA]">Associação</button><button aria-pressed="false" class="px-4 py-2 rounded-full text-sm font-medium transition-all bg-white border border-[#E2E8F0] text-[#475569] hover:border-[#4338CA] hover:text-[#4338CA]">Centro Especializado</button><button aria-pressed="false" class="px-4 py-2 rounded-full text-sm font-medium transition-all bg-white border border-[#
1E2E8F0] text-[#475569] hover:border-[#4338CA] hover:text-[#4338CA]">Hospital</button></div><div class="grid grid-cols-1 md:grid-cols-2 xl:grid-cols-3 gap-6"><div role="button" tabindex="0" aria-pressed="false" class="bg-white rounded-3xl p-6 border flex flex-col gap-4 cursor-pointer transition-all duration-300 hover:-translate-y-1 border-[#E2E8F0] hover:border-[#4338CA] hover:shadow-md"><div class="flex items-center justify-between"><span class="text-xs font-medium px-3 py-1 rounded-full bg-[#EDE9FE] text-[#4338CA]">Hospital</span><span class="text-xs text-slate-500">SP</span></div><h2 class="text-slate-900 font-bold text-lg leading-snug">Hospital das Clinicas de Sao Paulo</h2><div class="flex flex-col gap-1 text-sm text-slate-600"><span>Sao Paulo<!-- -->, <!-- -->SP</span><span>(11) 2661-0000</span></div><a href="https://www.hc.fm.usp.br" target="_blank" rel="noopener noreferrer" aria-label="Visitar site de Hospital das Clinicas de Sao Paulo" class="text-[#4338CA] text-sm font-medium hover:underline mt-auto">Visitar site â</a></div><div role="button" tabindex="0" aria-pressed="false" class="bg-white rounded-3xl p-6 border flex flex-col gap-4 cursor-pointer transition-all duration-300 hover:-translate-y-1 border-[#E2E8F0] hover:border-[#4338CA] hover:shadow-md"><div class="flex items-center justify-between"><span class="text-xs font-medium px-3 py-1 rounded-full bg-[#EDE9FE] text-[#4338CA]">Hospital</span><span class="text-xs text-slate-500">RJ</span></div><h2 class="text-slate-900 font-bold text-lg leading-snug">Instituto Nacional Fernandes Figueira</h2><div class="flex flex-col gap-1 text-sm text-slate-600"><span>Rio de Janeiro<!-- -->, <!-- -->RJ</span><span>(21) 2554-1700</span></div><a href="https://www.iff.fiocruz.br" target="_blank" rel="noopener noreferrer" aria-label="Visitar site de Instituto Nacional Fernandes Figueira" class="text-[#4338CA] text-sm font-medium hover:underline mt-auto">Visitar site â</a></div><div role="button" tabindex="0" aria-pressed="false" class="bg-white rounded-3xl p-6 border flex flex-col gap-4 cursor-pointer transition-all duration-300 hover:-translate-y-1 border-[#E2E8F0] hover:border-[#4338CA] hover:shadow-md"><div class="flex items-center justify-between"><span class="text-xs font-medium px-3 py-1 rounded-full bg-slate-100 text-slate-600">Associação</span><span class="text-xs text-slate-500">SP</span></div><h2 class="text-slate-900 font-bold text-lg leading-snug">Associacao Brasileira de Doencas Raras</h2><div class="flex flex-col gap-1 text-sm text-slate-600"><span>Sao Paulo<!-- -->, <!-- -->SP</span><span>(11) 3392-8090</span></div><a href="https://www.abdr.org.br" target="_blank" rel="noopener noreferrer" aria-label="Visitar site de Associacao Brasileira de Doencas Raras" class="text-[#4338CA] text-sm font-medium hover:underline mt-auto">Visitar site â</a></div><div role="button" tabindex="0" aria-pressed="false" class="bg-white rounded-3xl p-6 border flex flex-col gap-4 cursor-pointer transition-all duration-300 hover:-translate-y-1 border-[#E2E8F0] hover:border-[#4338CA] hover:shadow-md"><div class="flex items-center justify-between"><span class="text-xs font-medium px-3 py-1 rounded-full bg-[#EDE9FE] text-[#4338CA]">Hospital</span><span class="text-xs text-slate-500">RS</span></div><h2 class="text-slate-900 font-bold text-lg leading-snug">Hospital de Clinicas de Porto Alegre</h2><div class="flex flex-col gap-1 text-sm text-slate-600"><span>Porto Alegre<!-- -->, <!-- -->RS</span><span>(51) 3359-8000</span></div><a href="https://www.hcpa.edu.br" target="_blank" rel="noopener noreferrer" aria-label="Visitar site de Hospital de Clinicas de Porto Alegre" class="text-[#4338CA] text-sm font-medium hover:underline mt-auto">Visitar site â</a></div><div role="button" tabindex="0" aria-pressed="false" class="bg-white rounded-3xl p-6 border flex flex-col gap-4 cursor-pointer transition-all duration-300 hover:-translate-y-1 border-[#E2E8F0] hover:border-[#4338CA] hover:shadow-md"><div class="flex items-center justify-between"><span class="text-xs font-medium px-3 py-1 rounded-full bg-slate-100 text-slate-600">Associação</span><span class="text-xs text-slate-500">SP</span></div><h2 class="text-slate-900 font-bold text-lg leading-snug">Associacao dos Portadores de Fibrose Cistica</h2><div class="flex flex-col gap-1 text-sm text-slate-600"><span>Sao Paulo<!-- -->, <!-- -->SP</span><span>(11) 5572-5614</span></div><a href="https://www.fibrosecistica.org.br" target="_blank" rel="noopener noreferrer" aria-label="Visitar site de Associacao dos Portadores de Fibrose Cistica" class="text-[#4338CA] text-sm font-medium hover:underline mt-auto">Visitar site â</a></div><div role="button" tabindex="0" aria-pressed="false" class="bg-white rounded-3xl p-6 border flex flex-col gap-4 cursor-pointer transition-all duration-300 hover:-translate-y-1 border-[#
1E2E8F0] hover:border-[#4338CA] hover:shadow-md"><div class="flex items-center justify-between"><span class="text-xs font-medium px-3 py-1 rounded-full bg-[#FEF3C7] text-[#92400E]">Centro Especializado</span><span class="text-xs text-slate-500">CE</span></div><h2 class="text-slate-900 font-bold text-lg leading-snug">Hospital Universitario Walter Cantidio</h2><div class="flex flex-col gap-1 text-sm text-slate-600"><span>Fortaleza<!-- -->, <!-- -->CE</span><span>(85) 3366-8500</span></div><a href="https://www.huwc.ufc.br" target="_blank" rel="noopener noreferrer" aria-label="Visitar site de Hospital Universitario Walter Cantidio" class="text-[#4338CA] text-sm font-medium hover:underline mt-auto">Visitar site â</a></div><div role="button" tabindex="0" aria-pressed="false" class="bg-white rounded-3xl p-6 border flex flex-col gap-4 cursor-pointer transition-all duration-300 hover:-translate-y-1 border-[#E2E8F0] hover:border-[#4338CA] hover:shadow-md"><div class="flex items-center justify-between"><span class="text-xs font-medium px-3 py-1 rounded-full bg-[#FEF3C7] text-[#92400E]">Centro Especializado</span><span class="text-xs text-slate-500">PE</span></div><h2 class="text-slate-900 font-bold text-lg leading-snug">Instituto de Medicina Integral Fernando Figueira</h2><div class="flex flex-col gap-1 text-sm text-slate-600"><span>Recife<!-- -->, <!-- -->PE</span><span>(81) 2122-4100</span></div><a href="https://www.imip.org.br" target="_blank" rel="noopener noreferrer" aria-label="Visitar site de Instituto de Medicina Integral Fernando Figueira" class="text-[#4338CA] text-sm font-medium hover:underline mt-auto">Visitar site â</a></div><div role="button" tabindex="0" aria-pressed="false" class="bg-white rounded-3xl p-6 border flex flex-col gap-4 cursor-pointer transition-all duration-300 hover:-translate-y-1 border-[#E2E8F0] hover:border-[#4338CA] hover:shadow-md"><div class="flex items-center justify-between"><span class="text-xs font-medium px-3 py-1 rounded-full bg-slate-100 text-slate-600">Associação</span><span class="text-xs text-slate-500">SP</span></div><h2 class="text-slate-900 font-bold text-lg leading-snug">Associacao Brasileira de Esclerose Lateral Amiotrofica</h2><div class="flex flex-col gap-1 text-sm text-slate-600"><span>Sao Paulo<!-- -->, <!-- -->SP</span><span>(11) 5044-8900</span></div><a href="https://www.abrela.org.br" target="_blank" rel="noopener noreferrer" aria-label="Visitar site de Associacao Brasileira de Esclerose Lateral Amiotrofica" class="text-[#4338CA] text-sm font-medium hover:underline mt-auto">Visitar site â</a></div><div role="button" tabindex="0" aria-pressed="false" class="bg-white rounded-3xl p-6 border flex flex-col gap-4 cursor-pointer transition-all duration-300 hover:-translate-y-1 border-[#E2E8F0] hover:border-[#4338CA] hover:shadow-md"><div class="flex items-center justify-between"><span class="text-xs font-medium px-3 py-1 rounded-full bg-[#EDE9FE] text-[#4338CA]">Hospital</span><span class="text-xs text-slate-500">SP</span></div><h2 class="text-slate-900 font-bold text-lg leading-snug">Hospital de Clinicas da UNICAMP</h2><div class="flex flex-col gap-1 text-sm text-slate-600"><span>Campinas<!-- -->, <!-- -->SP</span><span>(19) 3521-7000</span></div><a href="https://www.hc.unicamp.br" target="_blank" rel="noopener noreferrer" aria-label="Visitar site de Hospital de Clinicas da UNICAMP" class="text-[#4338CA] text-sm font-medium hover:underline mt-auto">Visitar site â</a></div><div role="button" tabindex="0" aria-pressed="false" class="bg-white rounded-3xl p-6 border flex flex-col gap-4 cursor-pointer transition-all duration-300 hover:-translate-y-1 border-[#E2E8F0] hover:border-[#4338CA] hover:shadow-md"><div class="flex items-center justify-between"><span class="text-xs font-medium px-3 py-1 rounded-full bg-[#EDE9FE] text-[#4338CA]">Hospital</span><span class="text-xs text-slate-500">MG</span></div><h2 class="text-slate-900 font-bold text-lg leading-snug">Hospital das Clinicas da UFMG</h2><div class="flex flex-col gap-1 text-sm text-slate-600"><span>Belo Horizonte<!-- -->, <!-- -->MG</span><span>(31) 3409-9000</span></div><a href="https://www.hc.ufmg.br" target="_blank" rel="noopener noreferrer" aria-label="Visitar site de Hospital das Clinicas da UFMG" class="text-[#4338CA] text-sm font-medium hover:underline mt-auto">Visitar site â</a></div><div role="button" tabindex="0" aria-pressed="false" class="bg-white rounded-3xl p-6 border flex flex-col gap-4 cursor-pointer transition-all duration-300 hover:-translate-y-1 border-[#
1E2E8F0] hover:border-[#4338CA] hover:shadow-md"><div class="flex items-center justify-between"><span class="text-xs font-medium px-3 py-1 rounded-full bg-[#FEF3C7] text-[#92400E]">Centro Especializado</span><span class="text-xs text-slate-500">PR</span></div><h2 class="text-slate-900 font-bold text-lg leading-snug">Instituto de Genetica Medica</h2><div class="flex flex-col gap-1 text-sm text-slate-600"><span>Curitiba<!-- -->, <!-- -->PR</span><span>(41) 3360-1800</span></div><a href="https://www.hc.ufpr.br" target="_blank" rel="noopener noreferrer" aria-label="Visitar site de Instituto de Genetica Medica" class="text-[#4338CA] text-sm font-medium hover:underline mt-auto">Visitar site â</a></div><div role="button" tabindex="0" aria-pressed="false" class="bg-white rounded-3xl p-6 border flex flex-col gap-4 cursor-pointer transition-all duration-300 hover:-translate-y-1 border-[#E2E8F0] hover:border-[#4338CA] hover:shadow-md"><div class="flex items-center justify-between"><span class="text-xs font-medium px-3 py-1 rounded-full bg-slate-100 text-slate-600">Associação</span><span class="text-xs text-slate-500">RS</span></div><h2 class="text-slate-900 font-bold text-lg leading-snug">Associacao de Apoio a Mucoviscidose</h2><div class="flex flex-col gap-1 text-sm text-slate-600"><span>Porto Alegre<!-- -->, <!-- -->RS</span><span>(51) 3332-4788</span></div><a href="https://www.aamucoviscidose.org.br" target="_blank" rel="noopener noreferrer" aria-label="Visitar site de Associacao de Apoio a Mucoviscidose" class="text-[#4338CA] text-sm font-medium hover:underline mt-auto">Visitar site â</a></div><div role="button" tabindex="0" aria-pressed="false" class="bg-white rounded-3xl p-6 border flex flex-col gap-4 cursor-pointer transition-all duration-300 hover:-translate-y-1 border-[#E2E8F0] hover:border-[#4338CA] hover:shadow-md"><div class="flex items-center justify-between"><span class="text-xs font-medium px-3 py-1 rounded-full bg-[#EDE9FE] text-[#4338CA]">Hospital</span><span class="text-xs text-slate-500">SP</span></div><h2 class="text-slate-900 font-bold text-lg leading-snug">Hospital Universitario da USP</h2><div class="flex flex-col gap-1 text-sm text-slate-600"><span>Sao Paulo<!-- -->, <!-- -->SP</span><span>(11) 3091-9200</span></div><a href="https://www.hu.usp.br" target="_blank" rel="noopener noreferrer" aria-label="Visitar site de Hospital Universitario da USP" class="text-[#4338CA] text-sm font-medium hover:underline mt-auto">Visitar site â</a></div><div role="button" tabindex="0" aria-pressed="false" class="bg-white rounded-3xl p-6 border flex flex-col gap-4 cursor-pointer transition-all duration-300 hover:-translate-y-1 border-[#E2E8F0] hover:border-[#4338CA] hover:shadow-md"><div class="flex items-center justify-between"><span class="text-xs font-medium px-3 py-1 rounded-full bg-slate-100 text-slate-600">Associação</span><span class="text-xs text-slate-500">SP</span></div><h2 class="text-slate-900 font-bold text-lg leading-snug">Associacao Sindrome de Hunter Brasil</h2><div class="flex flex-col gap-1 text-sm text-slate-600"><span>Sao Paulo<!-- -->, <!-- -->SP</span><span>(11) 3266-4442</span></div><a href="https://www.hunterbrasil.org.br" target="_blank" rel="noopener noreferrer" aria-label="Visitar site de Associacao Sindrome de Hunter Brasil" class="text-[#4338CA] text-sm font-medium hover:underline mt-auto">Visitar site â</a></div><div role="button" tabindex="0" aria-pressed="false" class="bg-white rounded-3xl p-6 border flex flex-col gap-4 cursor-pointer transition-all duration-300 hover:-translate-y-1 border-[#E2E8F0] hover:border-[#4338CA] hover:shadow-md"><div class="flex items-center justify-between"><span class="text-xs font-medium px-3 py-1 rounded-full bg-[#FEF3C7] text-[#92400E]">Centro Especializado</span><span class="text-xs text-slate-500">BA</span></div><h2 class="text-slate-900 font-bold text-lg leading-snug">Centro de Referencia em Doencas Raras UFBA</h2><div class="flex flex-col gap-1 text-sm text-slate-600"><span>Salvador<!-- -->, <!-- -->BA</span><span>(71) 3283-8000</span></div><a href="https://www.hupes.ufba.br" target="_blank" rel="noopener noreferrer" aria-label="Visitar site de Centro de Referencia em Doencas Raras UF
1BA" class="text-[#4338CA] text-sm font-medium hover:underline mt-auto">Visitar site â</a></div><div role="button" tabindex="0" aria-pressed="false" class="bg-white rounded-3xl p-6 border flex flex-col gap-4 cursor-pointer transition-all duration-300 hover:-translate-y-1 border-[#E2E8F0] hover:border-[#4338CA] hover:shadow-md"><div class="flex items-center justify-between"><span class="text-xs font-medium px-3 py-1 rounded-full bg-[#EDE9FE] text-[#4338CA]">Hospital</span><span class="text-xs text-slate-500">MG</span></div><h2 class="text-slate-900 font-bold text-lg leading-snug">Hospital Infantil Joao Paulo II</h2><div class="flex flex-col gap-1 text-sm text-slate-600"><span>Belo Horizonte<!-- -->, <!-- -->MG</span><span>(31) 3239-9200</span></div><a href="https://www.fhemig.mg.gov.br" target="_blank" rel="noopener noreferrer" aria-label="Visitar site de Hospital Infantil Joao Paulo II" class="text-[#4338CA] text-sm font-medium hover:underline mt-auto">Visitar site â</a></div><div role="button" tabindex="0" aria-pressed="false" class="bg-white rounded-3xl p-6 border flex flex-col gap-4 cursor-pointer transition-all duration-300 hover:-translate-y-1 border-[#E2E8F0] hover:border-[#4338CA] hover:shadow-md"><div class="flex items-center justify-between"><span class="text-xs font-medium px-3 py-1 rounded-full bg-slate-100 text-slate-600">Associação</span><span class="text-xs text-slate-500">RJ</span></div><h2 class="text-slate-900 font-bold text-lg leading-snug">Associacao Brasileira de Sindrome de Marfan</h2><div class="flex flex-col gap-1 text-sm text-slate-600"><span>Rio de Janeiro<!-- -->, <!-- -->RJ</span><span>(21) 2579-0707</span></div><a href="https://www.marfan.org.br" target="_blank" rel="noopener noreferrer" aria-label="Visitar site de Associacao Brasileira de Sindrome de Marfan" class="text-[#4338CA] text-sm font-medium hover:underline mt-auto">Visitar site â</a></div><div role="button" tabindex="0" aria-pressed="false" class="bg-white rounded-3xl p-6 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