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10	<title>About NPKUA | NPKUA</title>
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99<meta name="msapplication-TileImage" content="https://www.npkua.org/wp-content/uploads/2024/04/cropped-NPKUA-Facvicon-270x270.png" />
100<style id="wp-custom-css">
101.pum-content.popmake-content .wp-block-image {
102	text-align: center;
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104.pum-theme-7483 .pum-container, .pum-theme-lightbox .pum-container {
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111	margin-top: 4px;
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115	background: #fad3c5;
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118#address-notice {
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121	padding-bottom: 0.5rem;
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124	font-size: 18px;
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127	#address-notice {
128		margin-top: 34px;
129	}
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134	height: 100%;
135	width: 92%;
136	margin: auto;
137	display: flex;
138	flex-direction: column;
139	justify-content: center;
140	flex-wrap: wrap;
141	align-items: center;
142	padding-top: 9rem;
143}
144#home-slide-1 .locator-box h2 {
145	text-align: center;
146}
147@media (max-width:1280px) {
148	#home-slide-1 .locator-box {
149		padding-top: 5rem;
150	}
151}
152#home-slide-1 .locator-box .btn-row {
153	display: flex;
154	justify-content: center;
155}
156#home-slide-2 .locator-box {
157	height: 100%;
158	width: 92%;
159	margin: auto;
160	display: flex;
161	flex-direction: column;
162	align-items: left;
163	justify-content: end;
164	padding-bottom: 7rem;
165}
166
167#home-slide-3 .locator-box {
168	padding-top: 5rem;
169	width: 92%;
170	margin-left: 4%;
171	max-width: 500px;
172}
173
174.swiper-npkua1 span.smaller {
175	font-size: 1.6rem;
176	display: block;
177	padding-top: 1rem;
178}
179
180
181/* Logos-1 Block */
182img.logo1-logo-img {
183	width: auto;
184	max-width: 150px;
185}
186
187/* True PKU */
188.truepku-pupple-banner {
189	background: #C0368F;
190	width: 100%;
191	display: block;
192	margin: 2rem 0 0;
193}
194.truepku-pupple-banner a {
195	width: 100%;
196	display: block;
197	margin: auto;
198}
199.truepku-pupple-banner a img {
200	width: 100%;
201	max-width: 989px;
202	margin: auto;
203}
204
205/* .tribe-events-calendar-month__calendar-event-datetime::after {
206	content: 'EDT';
207	position: relative;
208	display: inline;
209} */
210.swiper-logos-4 .swiper-slide img {
211	max-height:150px;
212}
213
214#newborn-kit .order-newborn-kit span {
215	background: #2f8eb8;
216	color: white;
217	display: inline-block;
218	text-decoration: none !important;
219	padding: 12px 20px;
220	transition: 0.15s ease-in-out;
221}
222#newborn-kit .order-newborn-kit span:hover {
223	background: #3bc3ef;
224}
225</style>
226	
227<link rel="preconnect" href="https://fonts.googleapis.com">
228<link rel="preconnect" href="https://fonts.gstatic.com" crossorigin>
229<link href="https://fonts.googleapis.com/css2?family=Montserrat:ital,wght@0,100..900;1,100..900&display=swap" rel="stylesheet">
230<style>
231/* Header */
232.header-alert-bar { background:#ffffff; color:#2F8EB8; }
233.hamline { background-color:#2f8eb8 }
234/* Footer */
235footer#colophon { background:#d3d3d3; border-color:#f0f0f0 }
236.footer-border-color { border-color:#f0f0f0 }
237.footer-info-col, .footer-nav-menu, .footer-text { color:#676767 }
238.footer-icon { color:#226EC9 }
239.footer-menu-label { color:#676767 }
240/* Primary */
241.fill-primary { fill: #2f8eb8 }
242.btn-primary, .gform_wrapper.gravity-theme #field_submit.gfield input, input.search-submit { background:#3bc3ef; color:#ffffff; }
243.btn-primary:hover, .gform_wrapper.gravity-theme .gform_footer input:hover, .gform_wrapper.gravity-theme #field_submit.gfield input:hover { background:#27c3f7; }
244.btn-primary:active, .gform_wrapper.gravity-theme .gform_footer input:active, .gform_wrapper.gravity-theme #field_submit.gfield input:active { background:#2f8eb8; }
245.btn-arrow-primary, .dark-mode .btn-arrow-color-mode { color:#3bc3ef; }
246.btn-arrow-primary:hover, .dark-mode .btn-arrow-color-mode:hover { color:#27c3f7; }
247.btn-arrow-primary:active, .dark-mode .btn-arrow-color-mode:active { color:#2f8eb8; }
248/* Secondary */
249  .btn-secondary { background:#2f8eb8; color:#fff; }
250  .btn-secondary:hover { background:#3bc3ef; }
251  .btn-secondary:active { background:#2f8eb8; }
252.btn-arrow-secondary, .light-mode .btn-arrow-color-mode { color:#2f8eb8; }
253.btn-arrow-secondary:hover, .light-mode .btn-arrow-color-mode:hover { color:#3bc3ef; }
254.btn-arrow-secondary:active, .light-mode .btn-arrow-color-mode:active { color:#2f8eb8; }
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257.bg-brand-light-2 { background-color:#e5e5e5 }
258.bg-brand-light-3 { background-color:#f7fcfe }
259.bg-brand-dark-1 { background-color:#000d19 }
260.bg-brand-dark-2 { background-color:#2f8eb8 }
261.bg-brand-dark-3 { background-color:#3bc3ef }
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263.dark-mode h6.eyebrow { color:#3bc3ef; }
264.light-mode h6.eyebrow { color:#2f8eb8; }
265.light-mode .step-number { background-color:#2f8eb8;
265color:rgba(255,255,255,0.95); }
266.dark-mode .step-number { background-color:#3bc3ef;color:#2f8eb8; }
267.prose-a\:text-prosecopy-link :is(:where(a):not(:where([class~="not-prose"] *))) { color:#2f8eb8 }
268.command-prose :where(a):not(:where([class~="not-prose"] *)) { color:#2f8eb8 }
269/* Pagination */
270a.page-numbers, span.page-numbers { color:#2f8eb8; background-color:#fff; }
271a.page-numbers:hover, span.page-numbers:hover, span.page-numbers.current { background-color:#2f8eb8; color:#fff; border-color:#2f8eb8 }
272/* Swiper.js */
273.light-mode .custom-swiper-scrollbar > div  { background: rgba(0,0,0,0.16); border-radius: 40px; }
274.light-mode .custom-swiper-scrollbar .swiper-scrollbar-drag  { background: rgb(31,41,55); border-radius: 40px; }
275.dark-mode .custom-swiper-scrollbar > div  { background: rgba(255,255,255,0.25); border-radius: 40px; }
276.dark-mode .custom-swiper-scrollbar .swiper-scrollbar-drag  { background: rgb(255,255,255); border-radius: 40px; }
277/* Roundness */
278  .btn, .gform_wrapper.gravity-theme .gform_footer input { padding: 8px 14px; }
279/* Font */
280.font-eyebrow, h6.eyebrow {
281  font-family: "Montserrat", sans-serif}
282.font-header, h1.h1, h1 .h1-single, h2.h2, h3.h3, h3.h3-small, h4.h4, h5.h5, .footer-menu-label, .footer-info-col {
283  font-family: "Montserrat", sans-serif}
284.font-body, .font-sans, .font-serif, .prose, .prose-lg, .prose-xl, .command-prose, .footer-nav-menu, p, ol, ul {
285  font-family: "Montserrat", sans-serif}
286.font-button, .btn, .btn-arrow, .category-badge, .post-category-badge {
287  font-family: "Montserrat", sans-serif}
288</style></head>
289
290<body class="wp-singular page-template-default page page-id-17 wp-embed-responsive wp-theme-commandtheme tribe-no-js">
291
292
293<div id="page">
294	<a href="#content" class="sr-only">Skip to content</a>
295
296	
297
298<header id="masthead" class="relative z-[60]">
299
300	<!-- Main Sidebar Menu -->
301	<div id="main-sidebar-menu" class="sticky hidden pl-12 overflow-hidden pb-44 lg:block top-24">
302		<div class="z-[60]">
303			<a class="block w-full max-w-[250px] header-logo pr-12" href="https://www.npkua.org/" rel="home" title="Go to homepage">
304				<img src="https://www.npkua.org/wp-content/uploads/2024/05/npkua-logo.svg" alt="npkua logo">
305			</a>
306			<a href="/donate/#donate-now" class="my-6 btn btn-primary">Donate</a>
307			<div class="pl-12">
308				<form role="search" method="get" class="search-form" action="https://www.npkua.org/">
309				<label>
310					<span class="screen-reader-text">Search for:</span>
311					<input type="search" class="search-field" placeholder="Search &hellip;" value="" name="s" />
312				</label>
313				<input type="submit" class="search-submit" value="Search" />
314			</form>			</div>
315			<nav id="primary-navigation" role="navigation" class="py-5 pl-12 font-button" aria-label="primary-navigation">
316				<div class="menu-main-navigation-container"><ul id="primary-menu" class="menu" aria-label="submenu"><li id="menu-item-3801" class="menu-item menu-item-type-post_type menu-item-object-page current-menu-item page_item page-item-17 current_page_item current-menu-ancestor current-menu-parent current_page_parent current_page_ancestor menu-item-has-children menu-item-3801"><a href="https://www.npkua.org/about-npkua/" aria-current="page">About NPKUA</a>
317<ul class="sub-menu">
318	<li id="menu-item-3808" class="menu-item menu-item-type-custom menu-item-object-custom current-menu-item menu-item-3808"><a href="/about-npkua/#mission-history" aria-current="page">Mission &#038; History</a></li>
319	<li id="menu-item-3809" class="menu-item menu-item-type-custom menu-item-object-custom current-menu-item menu-item-3809"><a href="/about-npkua/#directors-staff" aria-current="page">Directors &#038; Staff</a></li>
320	<li id="menu-item-5354" class="menu-item menu-item-type-custom menu-item-object-custom current-menu-item menu-item-5354"><a href="/about-npkua/#financials" aria-current="page">Financials &#038; Impact Reports</a></li>
321	<li id="menu-item-8003" class="menu-item menu-item-type-post_type menu-item-object-page menu-item-8003"><a href="https://www.npkua.org/news/">News &#038; Blog</a></li>
322	<li id="menu-item-7457" class="menu-item menu-item-type-post_type menu-item-object-page menu-item-7457"><a href="https://www.npkua.org/contact/">Contact Us</a></li>
323</ul>
324</li>
325<li id="menu-item-3802" class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-3802"><a href="https://www.npkua.org/about-pku/">About PKU</a>
326<ul class="sub-menu">
327	<li id="menu-item-5703" class="menu-item menu-item-type-custom menu-item-object-custom menu-item-5703"><a href="/about-pku/#treatment-options">Treatment Options</a></li>
328	<li id="menu-item-6378" class="menu-item menu-item-type-post_type menu-item-object-page menu-item-6378"><a href="https://www.npkua.org/truepku/">TruePKU</a></li>
329</ul>
330</li>
331<li id="menu-item-3804" class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-3804"><a href="https://www.npkua.org/npkua-events/">Events</a>
332<ul class="sub-menu">
333	<li id="menu-item-7989" class="menu-item menu-item-type-custom menu-item-object-custom menu-item-7989"><a target="_blank" href="https://secure.qgiv.com/event/ltlphilly/">Lifting the Limits Philly</a></li>
334	<li id="menu-item-6103" class="menu-item menu-item-type-custom menu-item-object-custom menu-item-6103"><a target="_blank" href="https://secure.qgiv.com/event/ltlnorthcarol
334ina/">Lifting the Limits North Carolina</a></li>
335	<li id="menu-item-7151" class="menu-item menu-item-type-post_type menu-item-object-page menu-item-7151"><a href="https://www.npkua.org/pkuawarenessday/">PKU Awareness Day</a></li>
336	<li id="menu-item-7925" class="menu-item menu-item-type-post_type menu-item-object-page menu-item-7925"><a href="https://www.npkua.org/moveyourpheet/">Move Your Pheet</a></li>
337	<li id="menu-item-6104" class="menu-item menu-item-type-custom menu-item-object-custom menu-item-6104"><a href="https://www.npkua.org/community-conference/">Community Conference</a></li>
338	<li id="menu-item-3813" class="menu-item menu-item-type-custom menu-item-object-custom menu-item-3813"><a href="/npkua-events/#calendar">Calendar</a></li>
339</ul>
340</li>
341<li id="menu-item-6121" class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-6121"><a href="https://www.npkua.org/donate/">Ways to Give</a>
342<ul class="sub-menu">
343	<li id="menu-item-7587" class="menu-item menu-item-type-post_type menu-item-object-page menu-item-7587"><a href="https://www.npkua.org/ways-to-give/">Ways to Give</a></li>
344	<li id="menu-item-7458" class="menu-item menu-item-type-post_type menu-item-object-page menu-item-7458"><a href="https://www.npkua.org/donate/">Donate</a></li>
345	<li id="menu-item-5707" class="menu-item menu-item-type-post_type menu-item-object-page menu-item-5707"><a href="https://www.npkua.org/volunteer/">Volunteer</a></li>
346	<li id="menu-item-7459" class="menu-item menu-item-type-custom menu-item-object-custom menu-item-7459"><a target="_blank" href="https://secure.qgiv.com/event/2026diy/">DIY Fundraising</a></li>
347</ul>
348</li>
349<li id="menu-item-3803" class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-3803"><a href="https://www.npkua.org/community-engagement/">Community Programs</a>
350<ul class="sub-menu">
351	<li id="menu-item-5709" class="menu-item menu-item-type-post_type menu-item-object-page menu-item-5709"><a href="https://www.npkua.org/support/">Community Calls</a></li>
352	<li id="menu-item-6158" class="menu-item menu-item-type-post_type menu-item-object-page menu-item-6158"><a href="https://www.npkua.org/support/mentor/">Mentor Program</a></li>
353	<li id="menu-item-5438" class="menu-item menu-item-type-post_type menu-item-object-page menu-item-5438"><a href="https://www.npkua.org/affiliates/">Affiliates</a></li>
354	<li id="menu-item-3828" class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3828"><a href="https://www.npkua.org/resources/kits-guides/">Kits &amp; Guides</a></li>
355	<li id="menu-item-7446" class="menu-item menu-item-type-post_type menu-item-object-page menu-item-7446"><a href="https://www.npkua.org/registry/">Patient Registry</a></li>
356	<li id="menu-item-3820" class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3820"><a href="https://www.npkua.org/advocacy/">Advocacy</a></li>
357	<li id="menu-item-7447" class="menu-item menu-item-type-custom menu-item-object-custom menu-item-7447"><a href="/registry/#genetic-testing">Genetic Testing</a></li>
358	<li id="menu-item-3827" class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3827"><a href="https://www.npkua.org/resources/pregnancy/">Pregnancy</a></li>
359	<li id="menu-item-8191" class="menu-item menu-item-type-custom menu-item-object-custom menu-item-8191"><a href="/resources/insurance-coverage/#insurance-navigator-support-program">Insurance Support Program</a></li>
360</ul>
361</li>
362<li id="menu-item-3805" class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-3805"><a href="https://www.npkua.org/registry/">Patient Registry</a>
363<ul class="sub-menu">
364	<li id="menu-item-3814" class="menu-item menu-item-type-custom menu-item-object-custom menu-item-3814"><a href="/registry/#genetic-testing">Genetic Testing</a></li>
365</ul>
366</li>
367<li id="menu-item-3806" class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-3806"><a href="https://www.npkua.org/research/">Research</a>
368<ul class="sub-menu">
369	<li id="menu-item-3817" class="menu-item menu-item-type-custom menu-item-object-custom menu-item-3817"><a href="/research/#research-grants">Research Grants</a></li>
370	<li id="menu-item-5704" class="menu-item menu-item-type-custom menu-item-object-custom menu-item-5704"><a href="/research/#scientific-advisory-board">Scientific Advisory Board</a></li>
371	<li id="menu-item-3816" class="menu-item menu-item-type-custom menu-item-object-custom menu-item-3816"><a href="/research/#clinical-trials">Clinical Trials</a></li>
372	<li id="menu-item-7065" class="menu-item menu-item-type-post_type menu-item-object-page menu-item-7065"><a href="https://www.npkua.org/research/pkustudies/">Recruiting PKU Studies</a></li>
373</ul>
374</li>
375<li id="menu-item-5979" class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-5979"><a href="/resources/insurance-coverage/">Resources</a>
376<ul class="sub-menu">
377	<li id="menu-item-3826" class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3826"><a href="https://www.npkua.org/resources/insurance-coverage/">Insurance Coverage</a></li>
378	<li id="menu-item-3821" class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3821"><a href="https://www.npkua.org/resources/cooking-food/">Cooking &amp; Food</a></li>
379	<li id="menu-item-6347" class="menu-item menu-item-type-post_type menu-item-object-page menu-item-6347"><a href="https://www.npkua.org/resources/find-a-clinic/">Find a Clinic</a></li>
380	<li id="menu-item-8459" class="menu-item menu-item-type-post_type menu-item-object-page menu-item-8459"><a href="https://www.npkua.org/research/scientific-posters/">Scientific Posters</a></li>
381</ul>
382</li>
383</ul></div>			</nav>
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490
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500					</a>
501					<a href="/donate/#donate-now" class="px-3 py-1.5 ml-4 mr-auto text-sm font-semibold btn-primary font-button">Donate</a>
502				</div>
503			</div>
504							<div class="sticky-page-titlebar-bg"></div>
505				<h1 class="sticky-page-titlebar" style="background:#3BC3EF">About NPKUA</h1>
506					</div>
507	</div>
508
509</header><!-- #masthead -->
510
511	<div id="content">
512
513	<section id="primary" class="relative">
514
515		
516		<main id="main">
517			
518<article id="post-17" class="post-17 page type-page status-publish hentry">
519		
520  <div  class="about1-block lg:-mt-12 overflow-hidden relative bg-brand-light-1 light-mode ">
521          <div class="relative z-20 container-left">
522          <div class="tb-padding-normal">
523              <div class="flex flex-wrap items-srart">
524                <div class="relative flex-auto order-2 block w-full sm:flex lg:order-1 lg:w-2/5 lg:pr-4 lg:block">
525                                                            <div class="flex-1">
526                        <img decoding="async" class="w-full" src="https://www.npkua.org/wp-content/uploads/2024/07/5131.jpg" alt="" />
527                      </div>
528                                                      </div>
529                <div class="flex-auto order-1 w-full pl-6 md:pl-8 lg:order-2 lg:w-3/5 lg:pt-16 xl:pt-24 2xl:pt-32">
530                                                        <h1 class="mb-4 h1">We’re here to offer help and hope.</h1>
531                                                        <div class="w-full command-prose"><p>Our mission is to improve the lives of individuals with PKU, pursue a cure by expanding research and provide education and support to individuals living with PKU and their caregivers.</p>
532<p>Our goal is to serve as the go-to resource for all PKU needs at all life stages.</p>
533<p>Together we’re understood.<br />
534Together we’re strong.<br />
535Together we’ll fund and find a cure.</p>
536</div>
537                                                    </div>
538              </div>
539          </div>
540      </div>
541  </div>
542
543
544
545
546  <div id="mission-history"  class="about2-block overflow-hidden relative bg-brand-light-1 light-mode ">
547        <div class="bot-padding-normal">
548      <div class="relative z-20 container-normal">
549        <div class="flex flex-wrap items-start">
550          <div class="flex-auto order-1 w-full pr-6 md:pr-8 lg:pr-12 lg:pt-0">
551                                      <h2 class="mb-4 h2">History and Milestones </h2>
552                                      <div class="w-full command-prose"><p>NPKUA was founded in 2008 after parents and grandparents formed a working group in 2006 to create the beginnings of National PKU Alliance (NPKUA) to unite local and regional groups throughout the U.S.</p>
553<p>Soon after the inception of NPKUA, the Scientific Advisory Board (SAB) formed in 2009 and proudly approved the first NPKUA-funded grant for Denise Ney on her work on GMP usage in medical foods in 2010. During this same year, NPKUA hosted its first conference, “High Hopes.”</p>
554<p>In 2015, NPKUA began hosting Lifting the Limits (LTL) for PKU as a fundraising campaign to support PKU research funding. Since this first event, NPKUA has hosted numerous LTLs, and it is our primary source of funding.</p>
555<p>A top priority of NPKUA has always been centered around research, and in 2015 the organization conducted its first national survey to assess current health status and unmet medical needs in the community, leading to an important publication that is still frequently cited today. Only a few years later, NPKUA launched the PKU Patient Registry in 2017 to accelerate PKU research and gather data into the lived experience of PKU.</p>
556<p>Since its inception in 2008, NPKUA has supported numerous successful LTL fundraising events, conferences and internal support programs, such as launching the Mentor Program and creating a group of affiliate organizations across the United States. The organization has remained steadfast in its support of research endeavors through regular communications with emerging industry and academic leaders at the forefront of PKU research and investing into the PKU Patent Registry, including launching a sponsored genetic testing program to provide no-cost genetic testing to individuals with PKU.</p>
557</div>
558                                  </div>
559        </div>
560      </div>
561          </div>
562  </div>
563
564
565
566
567  <div id="directors-staff"  class="about3-block overflow-hidden relative bg-brand-light-1 light-mode ">
568        <div class="relative z-20 container-normal">
569      <div class="none-padding-normal">
570        <div class="w-full pr-6 md:pr-8 lg:pr-12">
571          <!-- Board -->
572                      <h2 class="mb-4 h2">Meet our Board of Directors</h2>
573                                          <div class="flex flex-wrap pt-4 -mr-4">
574              
575                  <div id="board-bio-1" class="flex-auto flex-grow-0 relative block pb-8 pr-4 w-1/2 md:w-1/3 lg:w-1/4 xl:w-1/5 2xl:w-[14.2857%] bio-box-trigger">
576                                        <div class="block cursor-pointer">
577                      <img decoding="async" class="object-cover object-center w-full max-w-[300px] xs:max-w-full mx-auto" src="https://www.npkua.org/wp-content/uploads/2024/05/Rhonda-Connolly.jpg" alt="">
578                      <p class="pt-2 text-sm font-medium text-center">Rhonda Connolly</p>
579                      <p class="text-[11px] text-center">Chair</p>
580                    </div>
581                  </div>
582                
583              
584                  <div id="board-bio-2" class="flex-auto flex-grow-0 relative block pb-8 pr-4 w-1/2 md:w-1/3 lg:w-1/4 xl:w-1/5 2xl:w-[14.2857%] bio-box-trigger">
585                                        <div class="block cursor-pointer">
586                      <img decoding="async" class="object-cover object-center w-full max-w-[300px] xs:max-w-full mx-auto" src="https://www.npkua.org/wp-content/uploads/2024/05/Mark-Gralen.jpg" alt="">
587                      <p class="pt-2 text-sm font-medium text-center">Mark E. Gralen</p>
588                      <p class="text-[11px] text-center">Vice Chair</p>
589                    </div>
590                  </div>
591                
592              
593                  <div id="board-bio-3" class="flex-auto flex-grow-0 relative block pb-8 pr-4 w-1/2 md:w-1/3 lg:w-1/4 xl:w-1/5 2xl:w-[14.2857%] bio-box-trigger">
594                                        <div class="block cursor-pointer">
595                      <img decoding="async" class="object-cover object-center w-full max-w-[300px] xs:max-w-full mx-auto" src="https://www.npkua.org/wp-content/uploads/2024/05/Dan-Lazzari.jpg" alt="">
596                      <p class="pt-2 text-sm font-medium text-center">Dan Lazzari</p>
597                      <p class="text-[11px] text-center">Treasurer</p>
598                    </div>
599                  </div>
600                
601              
602                  <div id="board-bio-4" class="flex-auto flex-grow-0 relative block pb-8 pr-4 w-1/2 md:w-1/3 lg:w-1/4 xl:w-1/5 2xl:w-[14.2857%] bio-box-trigger">
603                                        <div class="block cursor-pointer">
604                      <img decoding="async" class="object-cover object-center w-full max-w-[300px] xs:max-w-full mx-auto" src="https://www.npkua.org/wp-content/uploads/2024/05/Alison-Reynolds.jpg" alt="">
605                      <p class="pt-2 text-sm font-medium text-center">Alison Reynolds</p>
606                      <p class="text-[11px] text-center">Secretary</p>
607                    </div>
608                  </div>
609                
610              
611                  <div id="board-bio-5" class="flex-auto flex-grow-0 relative block pb-8 pr-4 w-1/2 md:w-1/3 lg:w-1/4 xl:w-1/5 2xl:w-[14.2857%] bio-box-trigger">
612                                        <div class="block cursor-pointer">
613                      <img decoding="async" class="object-cover object-center w-full max-w-[300px] xs:max-w-full mx-auto" src="https://www.npkua.org/wp-content/uploads/2024/05/Susan-Berry.jpg" alt="">
614                      <p class="pt-2 text-sm font-medium text-center">Susan Berry, M.D.</p>
615                      <p class="text-[11px] text-center"></p>
616                    </div>
617                  </div>
618                
619              
620                  <div id="board-bio-6" class="flex-auto flex-grow-0 relative block pb-8 pr-4 w-1/2 md:w-1/3 lg:w-1/4 xl:w-1/5 2xl:w-[14.2857%] bio-box-trigger">
621                                        <div class="block cursor-pointer">
622                      <img decoding="async" class="object-cover object-center w-full max-w-[300px] xs:max-w-full mx-auto" src="https://www.npkua.org/wp-content/uploads/2024/05/David-MIckle.jpg" alt="">
623                      <p class="pt-2 text-sm font-medium text-center">David Mickle</p>
624                      <p class="text-[11px] text-center"></p>
625                    </div>
626                  </div>
627                
628              
629                  <div id="board-bio-7" class="flex-auto flex-grow-0 relative block pb-8 pr-4 w-1/2 md:w-1/3 lg:w-1/4 xl:w-1/5 2xl:w-[14.2857%] bio-box-trigger">
630                                        <div class="block cursor-pointer">
631                      <img decoding="async" class="object-cover object-center w-full max-w-[300px] xs:max-w-full mx-auto" src="https://www.npkua.org/wp-content/uploads/2024/05/Adam-Sherman.jpg" alt="">
632                      <p class="pt-2 text-sm font-medium text-center">Adam Sherman</p>
633                      <p class="text-[11px] text-center"></p>
634                    </div>
635                  </div>
636                
637              
638                  <div id="board-bio-8" class="flex-auto flex-grow-0 relative block pb-8 pr-4 w-1/2 md:w-1/3 lg:w-1/4 xl:w-1/5 2xl:w-[14.2857%] bio-box-trigger">
639                                        <div class="block cursor-pointer">
640                      <img decoding="async" class="object-cover object-center w-full max-w-[300px] xs:max-w-full mx-auto" src="https://www.npkua.org/wp-content/uploads/2024/05/Chuck-Bucklar.jpg" alt="">
641                      <p class="pt-2 text-sm font-medium text-center">Chuck Bucklar</p>
642                      <p class="text-[11px] text-center"></p>
643                    </div>
644                  </div>
645                
646              
647                  <div id="board-bio-9" class="flex-auto flex-grow-0 relative block pb-8 pr-4 w-1/2 md:w-1/3 lg:w-1/4 xl:w-1/5 2xl:w-[14.2857%] bio-box-trigger">
648                                        <div class="block cursor-pointer">
649                      <img decoding="async" class="object-cover object-center w-full max-w-[300px] xs:max-w-full mx-auto" src="https://www.npkua.org/wp-content/uploads/2024/05/Christina-Love.jpg" alt="">
650                      <p class="pt-2 text-sm font-medium text-center">Christina Love</p>
651                      <p class="text-[11px] text-center"></p>
652                    </div>
653                  </div>
654                
655              
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658                      <img decoding="async" class="object-cover object-center w-full max-w-[300px] xs:max-w-full mx-auto" src="https://www.npkua.org/wp-content/uploads/2024/05/Beth-Aselage.jpg" alt="">
659                      <p class="pt-2 text-sm font-medium text-center">Beth Aselage</p>
660                      <p class="text-[11px] text-center"></p>
661                    </div>
662                  </div>
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664              
665                  <div id="board-bio-11" class="flex-auto flex-grow-0 relative block pb-8 pr-4 w-1/2 md:w-1/3 lg:w-1/4 xl:w-1/5 2xl:w-[14.2857%] bio-box-trigger">
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667                      <img decoding="async" class="object-cover object-center w-full max-w-[300px] xs:max-w-full mx-auto" src="https://www.npkua.org/wp-content/uploads/2024/05/Michael-Finkel.jpg" alt="">
668                      <p class="pt-2 text-sm font-medium text-center">Michael A. Finkel, DO, MPH</p>
669                      <p class="text-[11px] text-center"></p>
670                    </div>
671                  </div>
672                
673                                        </div>
674                    
675          
676          <!-- Staff -->
677                      <h2 class="mb-4 h2">Meet our staff</h2>
678                                          <div class="flex flex-wrap pt-4 -mr-4">
679              
680                  <div id="staff-bio-1" class="flex-auto flex-grow-0 relative block pb-8 pr-4 w-1/2 md:w-1/3 lg:w-1/4 xl:w-1/5 2xl:w-[14.2857%] bio-box-trigger">
681                                        <div  class="block cursor-pointer">
682                      <img decoding="async" class="object-cover object-center w-full max-w-[300px] xs:max-w-full mx-auto" src="https://www.npkua.org/wp-content/uploads/2024/05/Catherine-Warren.jpg" alt="">
683                      <p class="pt-2 text-sm font-medium text-center">Catherine Warren</p>
684                      <p class="text-[11px] text-center">Executive Director</p>
685                    </div>
686                  </div>
687
688                
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690                  <div id="staff-bio-2" class="flex-auto flex-grow-0 relative block pb-8 pr-4 w-1/2 md:w-1/3 lg:w-1/4 xl:w-1/5 2xl:w-[14.2857%] bio-box-trigger">
691                                        <div  class="block cursor-pointer">
692                      <img decoding="async" class="object-cover object-center w-full max-w-[300px] xs:max-w-full mx-auto" src="https://www.npkua.org/wp-content/uploads/2024/05/Sarah-Gallagher.jpg" alt="">
693                      <p class="pt-2 text-sm font-medium text-center">Sarah Gallagher</p>
694                      <p class="text-[11px] text-center">Director of Community Engagement</p>
695                    </div>
696                  </div>
697
698                
699              
700                  <div id="staff-bio-3" class="flex-auto flex-grow-0 relative block pb-8 pr-4 w-1/2 md:w-1/3 lg:w-1/4 xl:w-1/5 2xl:w-[14.2857%] bio-box-trigger">
701                                        <div  class="block cursor-pointer">
702                      <img decoding="async" class="object-cover object-center w-full max-w-[300px] xs:max-w-full mx-auto" src="https://www.npkua.org/wp-content/uploads/2024/05/Blair-Giannini.jpg" alt="">
703                      <p class="pt-2 text-sm font-medium text-center">Blair Giannini*</p>
704                      <p class="text-[11px] text-center">Director of Events</p>
705                    </div>
706                  </div>
707
708                
709              
710                  <div id="staff-bio-4" class="flex-auto flex-grow-0 relative block pb-8 pr-4 w-1/2 md:w-1/3 lg:w-1/4 xl:w-1/5 2xl:w-[14.2857%] bio-box-trigger">
711                                        <div  class="block cursor-pointer">
712                      <img decoding="async" class="object-cover object-center w-full max-w-[300px] xs:max-w-full mx-auto" src="https://www.npkua.org/wp-content/uploads/2024/05/Susie-Gray.jpg" alt="">
713                      <p class="pt-2 text-sm font-medium text-center">Susie Gray</p>
714                      <p class="text-[11px] text-center">Director of Development</p>
715                    </div>
716                  </div>
717
718                
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722                      <img decoding="async" class="object-cover object-center w-full max-w-[300px] xs:max-w-full mx-auto" src="https://www.npkua.org/wp-content/uploads/2024/05/Elaina-Jurecki.jpg" alt="">
723                      <p class="pt-2 text-sm font-medium text-center">Elaina Jurecki, M.S., R.D.*</p>
724                      <p class="text-[11px] text-center">Director of Research Development</p>
725                    </div>
726                  </div>
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730                  <div id="staff-bio-6" class="flex-auto flex-grow-0 relative block pb-8 pr-4 w-1/2 md:w-1/3 lg:w-1/4 xl:w-1/5 2xl:w-[14.2857%] bio-box-trigger">
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732                      <img decoding="async" class="object-cover object-center w-full max-w-[300px] xs:max-w-full mx-auto" src="https://www.npkua.org/wp-content/uploads/2024/05/Kelsey-McQueen-1.jpg" alt="Kelsey McQueen">
733                      <p class="pt-2 text-sm font-medium text-center">Kelsey McQueen, M.S., C.G.C.</p>
734                      <p class="text-[11px] text-center">Associate Director of Research Development</p>
735                    </div>
736                  </div>
737
738                
739              
740                  <div id="staff-bio-7" class="flex-auto flex-grow-0 relative block pb-8 pr-4 w-1/2 md:w-1/3 lg:w-1/4 xl:w-1/5 2xl:w-[14.2857%] bio-box-trigger">
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742                      <img decoding="async" class="object-cover object-center w-full max-w-[300px] xs:max-w-full mx-auto" src="https://www.npkua.org/wp-content/uploads/2025/08/thumbnail_Leanna-Annunziato-Headshot-2-e1754657799380.jpg" alt="">
743                      <p class="pt-2 text-sm font-medium text-center">Leanna Donahue</p>
744                      <p class="text-[11px] text-center">Philanthropy and Communications Manager</p>
745                    </div>
746                  </div>
747
748                
749                                        </div>
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764        <div class="h-full pt-8 overflow-scroll">
765                                      <div data-id="board-bio-1" class="hidden person-bio-copy">
766                  <p class="font-medium">Rhonda Connolly</p>
767                                      <p>Chair</p>
768                                    <br>
769                  <div class="command-prose"><p>As the President of NPKUA, Rhonda is a dedicated and influential leader in the PKU community and has been involved with NPKUA since its inception. Rhonda&#8217;
769s enduring commitment to NPKUA evidences her passion for improving the lives of individuals with PKU. Her extensive experience and involvement began when her second son was born with PKU and she began leading Children’s PKU Network, the only national organization for PKU at the time. She and her husband, Chris, have three adult sons, two with PKU. Since the beginning of NPKUA, she has provided her valuable insights and expertise in guiding the organization&#8217;s mission and initiatives including creating the Registry and having a leading role in the Scientific Advisory Committee. Under her leadership, the NPKUA continues to make significant strides in supporting PKU individuals and their families.</p>
770</div>
771                </div>                
772                            <div data-id="board-bio-2" class="hidden person-bio-copy">
773                  <p class="font-medium">Mark E. Gralen</p>
774                                      <p>Vice Chair</p>
775                                    <br>
776                  <div class="command-prose"><p>Mark joins the NPKUA Board of Directors as a lawyer with 40 years of experience. He currently serves as the General Counsel and Executive Vice President of Attorneys’ Liability Assurance Society Ltd., a mutual company specializing in insuring and managing risk for 224 law firms with over 79,000 lawyers.  Mark also has 2 adult children with PKU.  He has served as President and on the Board of Directors for the PKU Organization of Illinois and been actively involved with the PKU community. He also has served on the Genetic and Metabol
776ic Diseases Advisory Committee of the Illinois Department of Public Health. Mark brings his extensive personal and professional experience to the NPKUA, and we are excited to have him join the NPKUA Board of Directors.</p>
777</div>
778                </div>                
779                            <div data-id="board-bio-3" class="hidden person-bio-copy">
780                  <p class="font-medium">Dan Lazzari</p>
781                                      <p>Treasurer</p>
782                                    <br>
783                  <div class="command-prose"><p>Dan joins the NPKUA Board of Directors as a seasoned life science executive with experience in finance, accounting, and operations management. Specifically, Dan has worked at emerging biotech and pharmaceutical companies developing therapies and cures for Rare Diseases, and he currently serves as the Vice President of Finance at Tevard Biosciences, a gene therapy company located in Cambridge, MA. In this role, Dan leads financial strategy and operational excellence while establishing rapport with top Universities, collaboration partners, and investors. We are so excited for Dan to bring his professional expertise to the NPKUA Board of Directors!</p>
784</div>
785                </div>                
786                            <div data-id="board-bio-4" class="hidden person-bio-copy">
787                  <p class="font-medium">Alison Reynolds</p>
788                                      <p>Secretary</p>
789                                    <br>
790                  <div class="command-prose"><p>Alison has been an engaged advocate for the PKU community since 2003 when her daughter Tia (born with Classical PKU) turned one-year-old, and she planned the first large scale fundraising gala to benefit PKU research. Alison researched ways to help improve the quality of life for PKU patients through investing in new treatments and cure-related research. Her research led her to focus on much-needed funding for promising early development therapeutics, while also spreading awareness about the challenges of life with PKU. Over the years, she partnered with the NPKUA to found <em><strong>Lifting the Limits for PKU</strong></em> galas, held other fundraisers for PKU research, and skied across Norway in 2020 to raise awareness about the rare disease.</p>
791<p>While her focus has been on a better life through funding new treatments and a cure, she has also spent time arguing on Capitol Hill that our government should help ensure families have the necessary medical foods and formula to prevent intellectual and physical disabilities associated with PKU. Alison has been on the NPKUA Board of Directors for three years and serves on the Executive Committee, as well as the Fundraising and Communications committees.</p>
792</div>
793                </div>                
794                            <div data-id="board-bio-5" class="hidden person-bio-copy">
795                  <p class="font-medium">Susan Berry, M.D.</p>
796                                      <p></p>
797                                    <br>
798                  <div class="command-prose"><p>Dr. Susan Berry is a physician who specializes in medical genetics as a member of the Genetics and Metabol
798ism Division in the Department of Pediatrics at the University of Minnesota. She attended medical school at the University of Kansas, then did her residency in pediatrics and fellowship in medical genetics at the University of Minnesota. She is a fellow of the American Academy of Pediatrics and the American College of Medical Genetics and Genomics, as well as the current President of the Board of Directors for the Society for Inherited Metabolic Disorders, In addition to serving on the Board of Directors at the NPKUA, she also serves on the Board at the National Organization for Rare Disease. In public policy advocacy, she is a member of the Minnesota Department of Health Newborn Screening Advisory Committee and has served on the Secretary of Health and Human Service’s Advisory Committee on Heritable Disorders in Newborns and Children. Dr. Berry brings her many accolades, significant experience, and extensive knowledge to the NPKUA’s many research and Patient Registry endeavors.</p>
799</div>
800                </div>                
801                            <div data-id="board-bio-6" class="hidden person-bio-copy">
802                  <p class="font-medium">David Mickle</p>
803                                      <p></p>
804                                    <br>
805                  <div class="command-prose"><p>David brings a career of expertise in strategic communications across the life sciences industry to the NPKUA Board of Directors. His experience includes working with biotechnology and pharmaceutical companies to launch therapies for rare conditions such as phenylketonuria, Cushing&#8217;s syndrome, cystinosis, and achondroplasia. Through these initiatives, David has worked closely with advocacy groups such as the Epilepsy Foundation, the Multiple Myeloma Research Foundation, and the Parkinson&#8217;s Disease Foundation, helping reach patient communities and developing connections among those living with rare conditions. David also serves on the NPKUA&#8217;s Communications and Fundraising Committees.</p>
806</div>
807                </div>                
808                            <div data-id="board-bio-7" class="hidden person-bio-copy">
809                  <p class="font-medium">Adam Sherman</p>
810                                      <p></p>
811                                    <br>
812                  <div class="command-prose"><p>Adam is a seasoned biopharmaceutical professional with over 25 years of experience in drug development for rare diseases. He worked on the development and commercialization of 7 rare disease therapeutics while at Genzyme, Biogen, and Ironwood Pharmaceuticals. Adam also directed the research strategy and infrastructure for the IFOPA, a global patient association for FOP. Adam currently is the Founder and CEO of Viakix, an outdoor footwear company. In addition to serving on the NPKUA Board of Directors, he also chairs the NPKUA Governance Committee.</p>
813</div>
814                </div>                
815                            <div data-id="board-bio-8" class="hidden person-bio-copy">
816                  <p class="font-medium">Chuck Bucklar</p>
817                                      <p></p>
818                                    <br>
819                  <div class="command-prose"><p>Chuck has over 30 years of commercial and general management experience in the biotechnology/pharmaceutical industry. During that time, he has held senior positions with increasing responsibilities at companies including BioMarin Pharmaceutical, GPC Biotech and Cephalon. Most recently, Chuck was the Senior Vice President of Commercial Operations for the North American business at BioMarin where he was responsible for all U.S. and Canadian commercial activities. During his nine plus years running the North American business at BioMarin, Chuck led teams that successfully launched and commercialized four rare disease products and managed transformational growth across the entire BioMarin portfolio. He also has extensive experience in market access, including cell and gene therapies. We are so excited for Chuck to bring his professional experience and passion for PKU treatments to the NPKUA Board of Directors!</p>
820</div>
821                </div>                
822                            <div data-id="board-bio-9" class="hidden person-bio-copy">
823                  <p class="font-medium">Christina Love</p>
824                                      <p></p>
825                                    <br>
826                  <div class="command-prose"><p>Christina Love has been a Registered Nurse for 18 over years with a background predominantly in the Neonatal/ NICU and the Pediatric Population. As an adult with PKU, she has a passion for giving back to the PKU community and is actively involved in spreading awareness through advocacy for the Medical Nutrition Equity Act on Capitol Hill. As a PKU adult and healthcare professional, the NPKUA is lucky to have Christina bring both her personal and professional experience to the Board of Directors!</p>
827</div>
828                </div>                
829                            <div data-id="board-bio-10" class="hidden person-bio-copy">
830                  <p class="font-medium">Beth Aselage</p>
831                                      <p></p>
832                                    <br>
833                  <div class="command-prose"><p>As the Vice President of the NPKUA, Beth brings her extensive experience as a certified professional patient advocate in life sciences to the NPKUA. She has expertise in strategic planning, patient advocacy collaborations, and strategic partnership development. Her experience in the life sciences has given her the ability to understand the emerging research in PKU, enabling her to bridge the gap between patient advocacy organizations and rare disease research institutions.</p>
834</div>
835                </div>                
836                            <div data-id="board-bio-11" class="hidden person-bio-copy">
837                  <p class="font-medium">Michael A. Finkel, DO, MPH</p>
838                                      <p></p>
839                                    <br>
840                  <div class="command-prose"><p>Dr. Finkel is an adult living with PKU and a physician dedicated to diagnosing and managing rare disease. Currently a fourth-year resident physician in Pediatrics and Medical Genetics at Detroit Medical Center, Dr. Finkel is pursuing a Medical Biochemical Genetics fellowship at University of Michigan beginning in July 2024 to fulfill his dream of becoming a metabolic physician. Outside of the clinic, Dr. Finkel is a strong advocate for newborn screening as well as the PKU and rare disease communities. In addition to his role on the NPKUA Patient Registry Committee, Dr. Finkel also serves on Michigan&#8217;s Newborn Screening Technical Advisory Committee and as a board member for the Midwest Genetics Network. </p>
841</div>
842                </div>                
843                                  
844                                      <div data-id="staff-bio-1" class="hidden person-bio-copy">
845                  <p class="font-medium">Catherine Warren</p>
846                  <p>Executive Director</p>
847                  <br>
848                  <div class="command-prose"><p>Devoted to making sure all people, regardless of income or background, have access to healthcare to live prosperous and fulfilling lives, Catherine has nearly two decades of nonprofit development and management expertise. As incoming Executive Director of the National PKU Alliance (NPKUA), Catherine&#8217;s personal connection to phenylketonuria (PKU) began 12 years ago when her nephew was diagnosed. This sparked her passion for raising funds and awareness for this metabolic disorder. She is deeply committed to advocating for improved treatment options, increased research funding, and enhanced access to resources for individuals and families affected by PKU. </p>
849<p>Catherine&#8217;s extensive career in nonprofit leadership includes serving as the Executive Director of the Susan G. Komen Virginia Blue Ridge Affiliate and later as Senior Director of Southwest Virginia for the Virginia Breast Cancer Foundation. She dedicated herself to fundraising for breast cancer support including the creation of a Screening and Diagnostic Services Fund. Catherine&#8217;s professional journey also encompasses roles with the Jefferson College of Health Sciences and the National Multiple Sclerosis Society, where she honed her skills in organizational management and community engagement. </p>
850<p>She holds a Bachelor of Science degree in Business Administration with special attainments in commerce from Washington and Lee University, along with a Certificate in Professional Leadership from Hollins University. Catherine resides in Roanoke, Virginia, with her husband, Chad, and their two daughters, Emmy and Caroline.</p>
851</div>
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853                            <div data-id="staff-bio-2" class="hidden person-bio-copy">
854                  <p class="font-medium">Sarah Gallagher</p>
855                  <p>Director of Community Engagement</p>
856                  <br>
857                  <div class="command-prose"><p>Sarah was first introduced to the PKU community in 2010 when her daughter was diagnosed at birth and has been an active community member since that time. Sarah holds a master’s degree from Columbia University and is a licensed school psych
857ologist. She has a professional background in project management, family and community engagement, assessment, counseling, and advocating for students with disabilities in special education. She joined the NPKUA as Director of Community Engagement in 2023. Sarah lives in San Antonio, Texas with her husband and three children. She and her family enjoy cooking, spending time outdoors, and traveling. </p>
858</div>
859                </div>                
860                            <div data-id="staff-bio-3" class="hidden person-bio-copy">
861                  <p class="font-medium">Blair Giannini*</p>
862                  <p>Director of Events</p>
863                  <br>
864                  <div class="command-prose"><p>Blair joined NPKUA in 2022 but has been part of the PKU community since 2006 when she met her son&#8217;s pre-school friend who has PKU and ended up being a carpool mate for eight years. She was the first person she knew with PKU.</p>
865<p>Blair graduated from Indiana University and worked in marketing, advertising and corporate branding before entering the events field as a consultant for Fortune 500 corporate clients. Since 2005, she has been an active fundraiser and event organizer as a member of the Founders Auxiliary Board at Children&#8217;s National Hospital in Washington, DC.</p>
866<p>Blair lives in the heart of Washington, DC, with her husband, Eugene, and their two pugs. In her free time, she strategizes on getting their son, who is in college, to return her calls and texts.</p>
867</div>
868                </div>                
869                            <div data-id="staff-bio-4" class="hidden person-bio-copy">
870                  <p class="font-medium">Susie Gray</p>
871                  <p>Director of Development</p>
872                  <br>
873                  <div class="command-prose"><p>Susie was introduced to the PKU community through a close friend, whose son has PKU. Their son’s journey was filled with extraordinary care, determination, and resilience. He is remarkable and thriving and Susie is humbled by the opportunity to support him and the PKU community by working for the NPKUA. </p>
874<p>In January of 2023, Susie became the Director of Development and works across various roles within the organization: helping the NPKUA support teens, adults, and caregivers; managing the organizations budgeting and forecasting; and collaborating with her team to optimize the donor database, deliver engaging events, and seek funding opportunities.</p>
875<p>Susie earned her MBA from the University of Kansas and has over 20 years’ experience across Finance, Operations, and Strategy. She lives outside of Kansas City, MO, with her husband and a house full of teenager
875s. She enjoys spending time with her family on the lake, traveling to visit loved ones in Minnesota, and finding fun ways to exercise, like rollerblading and paddleboarding.</p>
876</div>
877                </div>                
878                            <div data-id="staff-bio-5" class="hidden person-bio-copy">
879                  <p class="font-medium">Elaina Jurecki, M.S., R.D.*</p>
880                  <p>Director of Research Development</p>
881                  <br>
882                  <div class="command-prose"><p>In addition to her role at the NPKUA, Elaina also assists several other non-profit organizations, including Organic Acidemia Association, Homocystinuria Network America, and Maple Syrup Urine Disease Family Support Group. In addition, she consults for several Biotech organizations’ development of treatments for metabolic genetic disorders.</p>
883<p>Elaina previously worked at BioMarin Pharmaceutical, for 15 years, as the Executive Director of Scientific Communications, in Global Medical Affairs, responsible for publication strategy, scientific messaging, management of congress activities, and assisted in the development of clinical outcome assessment tools, clinical research protocols, and educational efforts.</p>
884<p>Prior to that, Elaina spent 20 years as the Regional Metabolic Coordinator for the Northern California Kaiser Medical Centers. She has co-authored many publications in a variety of metabolic, genetic, and clinical journals, served as a journal reviewer, and has written book chapters on the management of genetic disorders. She is an active member in several professional organizations and a founding member of the Genetic Metabolic Dietitians International (GMDI). She is the co-chair for the organic acidemia nutrition guidelines development committee, a project funded by the Southeastern Newborn Screening and Genetics Collaborative, and published, ‘Nutrition management guideline for propionic acidemias: An evidence- and consensus-based approach’ in <em>
884Molecular Genetics and Metabolism</em> in 2019, and currently on the workgroup for developing nutritional guidelines for urea cycle disorders. She is also co-chairing the Research Dietitian Committee for GMDI. She has given numerous presentations at scientific meetings, advisory boards, and patient events on various topics related to research, treatment, education, clinical outcome assessment tools, and clinical management of genetic disorders.</p>
885</div>
886                </div>                
887                            <div data-id="staff-bio-6" class="hidden person-bio-copy">
888                  <p class="font-medium">Kelsey McQueen, M.S., C.G.C.</p>
889                  <p>Associate Director of Research Development</p>
890                  <br>
891                  <div class="command-prose"><p>Originally from Richmond, VA, Kelsey attended Virginia Tech for her undergraduate career before moving to Boston to work in an oncology research lab and complete her Masters in Genetic Counseling at the Massachusetts General Hospital (MGH) Institute of Health Professions.</p>
892<p>While Kelsey doesn’t have a close friend or loved one with PKU, her younger sibling has a rare genetic disease, and she greatly appreciates the power of patient advocacy groups through this personal experience. Being exposed to the world of advocacy and rare disease from an early age, they quickly turned into passions and heavily influenced her career path. While Kelsey’s role at the NPKUA is focused on supporting the Registry, she combines her interests of genetics education, rare disease, and patient-centered research through the NPKUA. Outside of work, Kelsey loves to run, bake, and travel.</p>
893</div>
894                </div>                
895                            <div data-id="staff-bio-7" class="hidden person-bio-copy">
896                  <p class="font-medium">Leanna Donahue</p>
897                  <p>Philanthropy and Communications Manager</p>
898                  <br>
899                  <div class="command-prose"><p>Leanna Donahue joined NPKUA as their Philanthropy and Communications Manager in May 2025. She holds a bachelor’s degree in mass communications and media studies from Arizona State University. Since 2017, Leanna has worked with national and local nonprofit organizations supporting the disability community, rare disease community and individuals facing terminal illness. She has held roles in program management, fundraising and communications.</p>
900<p>While Leanna does not have a direct connection to PKU, her loved one’s experience navigating a rare disease is what initially inspired her to pursue a career in the nonprofit sector. She remains dedicated to empowering and advocating for the health and well-being of others. Based in the Los Angeles area, Leanna enjoys photography, cooking, traveling and spending time with family.</p>
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915                                                                    <div class="command-prose w-full "><div><i>*Contractor</i></div>
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926        <div class="flex flex-wrap items-start">
927          <div class="flex-auto order-1 w-full pr-6 md:pr-8 lg:pr-12 lg:pt-0">
928                                      <h2 class="mb-4 h2">Financial &#038; Annual Impact Reports</h2>
929                                      <div class="w-full command-prose"><p>Because of the generosity of our donors, like you, we’re able to help improve the lives of people affected by PKU and get closer to our mission of finding a cure.</p>
930<p>We appreciate all that you do for us, and we want you to see that we are responsible and thoughtful when it comes to our finances and spending. We invite you to look through our audited financial statements, Form 990s, and impact reports.</p>
931<p>Thank you for being a big part of our success and know that your continued support means the world to us.</p>
932<p>&nbsp;</p>
933<p><a href="https://www.npkua.org/wp-content/uploads/2026/06/2025-Signed-Final-
933Report-and-Financial-Statements.pdf">2025 Financial Statement</a><a href="https://www.npkua.org/wp-content/uploads/2026/05/2025-NPKUA-Impact-Report-.pdf"><br />
934</a><a href="https://www.npkua.org/wp-content/uploads/2026/06/990-Signed-Return-for-National-PKU-Alliance-Inc-2025.pdf">2025 Form 990</a><br />
935<a href="https://www.npkua.org/wp-content/uploads/2026/05/2025-NPKUA-Impact-Report-.pdf">2025 NPKUA Impact Report</a><br />
936<a href="https://www.npkua.org/wp-content/uploads/2025/04/2024-Signed-Final-Report-and-Financial-Statements.pdf" target="_blank" rel="noopener">2024 Financial Statement</a><br />
937<a href="https://www.npkua.org/wp-content/uploads/2025/04/Signed-External-990.pdf" target="_blank" rel="noopener">2024 Form 990</a><br />
938<a href="https://www.npkua.org/impact2024/">2024 NPKUA Impact Report</a><br />
939<a href="https://www.npkua.org/wp-content/uploads/2024/06/2023-Financial-Statements_NPKUA.pdf" target="_blank" rel="noopener">2023 Financial Statement</a><br />
940<a href="https://www.npkua.org/wp-content/uploads/2024/06/2023-Federal-Form-990_NPKUA.pdf" target="_blank" rel="noopener">2023 Form 990</a><br />
941<a href="https://online.fliphtml5.com/lwtce/ttaj/?blm_aid=0#p=1" target="_blank" rel="noopener">2023 NPKUA Impact Report</a><br />
942<a href="https://www.npkua.org/wp-content/uploads/2024/06/2022-Financial-Statements_NPKUA.pdf" target="_blank" rel="noopener">2022 Financial Statement</a><br />
943<a href="https://www.npkua.org/wp-content/uploads/2024/06/2022-Federal-Form-990_NPKUA.pdf" target="_blank" rel="noopener">2022 Form 990</a><br />
944<a href="https://www.npkua.org/wp-content/uploads/2024/06/2022-Impact-Report_NKKUA.pdf" target="_blank" rel="noopener">2022 NPKUA Impact Report</a></p>
945</div>
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1023				<div class="font-medium font-body">© 2026 National PKU Alliance</div>
1024				<div><p>The NPKUA is an independent organization, and a registered 501(c)3<br />
1025EIN: 26-2849140</p>
1026<p>2014 Electric Road, #212<br />
1027Roanoke, VA 24018<br />
1028Phone: 855.675.8211<br />
1029Email: <a href="mailto:[email protected]">[email protected]</a></p>
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1041		<div class="py-4 text-xs border-t border-gray-400 lg:py-6"><p>The information included here is for general informational purposes only. No material on this site is intended to be a substitute for professional medical advice. Always seek the advice of your physician or other qualified healthcare provider with any questions you may have regarding your medical care. The NPKUA has made every attempt to ensure accuracy of the information provided here, but cannot guarantee the validity of the information, and does not endorse any product or service offered.</p>
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1103<!-- Cache served by breeze CACHE (Desktop) - Last modified: Thu, 01 Oct 2026 19:52:29 GMT -->

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