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257				<span class="et_pb_image_wrap "><img loading="lazy" decoding="async" width="995" height="1124" src="https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Braille_Homepage_Mobile-1.jpg" alt="Child looking up to the left" title="Braille_Homepage_Mobile (1)" srcset="https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Braille_Homepage_Mobile-1.jpg 995w, https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Braille_Homepage_Mobile-1-980x1107.jpg 980w, https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Braille_Homepage_Mobile-1-480x542.jpg 480w" sizes="auto, (min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) 995px, 100vw" class="wp-image-2641" /></span>
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259				
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263				<div class="et_pb_text_inner"><h2>Usher Syndrome Society</h2></div>
264			</div><div class="et_pb_module et_pb_text et_pb_text_1 title  et_pb_text_align_left et_pb_bg_layout_light">
265				
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269				<div class="et_pb_text_inner"><h1>Bringing light to Usher syndrome</h1></div>
270			</div><div class="et_pb_module et_pb_text et_pb_text_2 font  et_pb_text_align_left et_pb_bg_layout_light">
271				
272				
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274				
275				<div class="et_pb_text_inner"><p><span style="font-weight: 400;">The Usher Syndrome Society is a non-profit 501(c)3 dedicated to raising public awareness and funding research for every type of Usher syndrome to accelerate the development of treatments and, ultimately, a cure for Usher syndrome (USH).</span></p>
276<p><span style="font-weight: 400;">Usher syndrome is the leading genetic cause of combined deafness and blindness.</span></p></div>
277			</div><div class="et_pb_module et_pb_code et_pb_code_0 icon-button et_clickable">
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284<svg xmlns="https://www.w3.org/2000/svg" width="32.322" height="30.98" viewBox="0 0 32.322 30.98">
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286</svg>
287<span>About Us</span>
288  </a></div>
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299    </g>
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301</svg>
302<span>Research</span>
303</a></div>
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349				<div class="et_pb_module et_pb_image et_pb_image_1 bleed-full bleed-nav">
350				
351				
352				
353				
354				<span class="et_pb_image_wrap "><img loading="lazy" decoding="async" width="1920" height="2000" src="https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Braille_Home1.png" alt="Light shining on boy looking up" title="Braille_Home1" srcset="https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Braille_Home1.png 1920w, https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Braille_Home1-1280x1333.png 1280w, https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Braille_Home1-980x1021.png 980w, https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Braille_Home1-480x500.png 480w" sizes="auto, (min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) and (max-width: 1280px) 1280px, (min-width: 1281px) 1920px, 100vw" class="wp-image-1185" /></span>
355			</div>
356			</div>
357				
358				
359				
360				
361			</div>
362				
363				
364			</div><div class="et_pb_section et_pb_section_1 dot-selector et_pb_with_background et_section_regular" >
365				
366				
367				
368				
369				
370				
371				<div class="et_pb_row et_pb_row_1 et_pb_equal_columns">
372				<div class="et_pb_column et_pb_column_1_2 et_pb_column_2 center-items  et_pb_css_mix_blend_mode_passthrough">
373				
374				
375				
376				
377				<div class="et_pb_module et_pb_video et_pb_video_0">
378				
379				
380				
381				
382				<div class="et_pb_video_box"><iframe loading="lazy" title="Usher Syndrome Society" src="https://player.vimeo.com/video/1036457843?dnt=1&amp;app_id=122963" width="1080" height="608" frameborder="0" allow="autoplay; fullscreen; picture-in-picture; clipboard-write; encrypted-media; web-share" referrerpolicy="strict-origin-when-cross-origin"></iframe></div>
383				<div style="background-image:url(https://www.ushersyndromesociety.org/wp-content/uploads/2025/02/Corderman-Kids_Video-Image-scaled.jpg)" class="et_pb_video_overlay"><div class="et_pb_video_overlay_hover"><a href="#" class="et_pb_video_play"></a></div></div>
384			</div>
385			</div><div class="et_pb_column et_pb_column_1_2 et_pb_column_3  et_pb_css_mix_blend_mode_passthrough et-last-child">
386				
387				
388				
389				
390				<div class="et_pb_module et_pb_text et_pb_text_3 title tight  et_pb_text_align_left et_pb_bg_layout_light">
391				
392				
393				
394				
395				<div class="et_pb_text_inner"><p>Awareness</p></div>
396			</div><div class="et_pb_module et_pb_text et_pb_text_4 title tight  et_pb_text_align_left et_pb_bg_layout_light">
397				
398				
399				
400				
401				<div class="et_pb_text_inner"><p>Research</p></div>
402			</div><div class="et_pb_module et_pb_text et_pb_text_5 title tight  et_pb_text_align_left et_pb_bg_layout_light">
403				
404				
405				
406				
407				<div class="et_pb_text_inner"><p>Cure</p></div>
408			</div><div class="et_pb_module et_pb_video et_pb_video_1">
409				
410				
411				
412				
413				<div class="et_pb_video_box"><iframe loading="lazy" title="Usher Syndrome Society" src="https://player.vimeo.com/video/1036457843?dnt=1&amp;app_id=122963" width="1080" height="608" frameborder="0" allow="autoplay; fullscreen; picture-in-picture; clipboard-write; encrypted-media; web-share" referrerpolicy="strict-origin-when-cross-origin"></iframe></div>
414				<div style="background-image:url(https://www.ushersyndromesociety.org/wp-content/uploads/2025/02/Corderman-Kids_Video-Image-scaled.jpg)" class="et_pb_video_overlay"><div class="et_pb_video_overlay_hover"><a href="#" class="et_pb_video_play"></a></div></div>
415			</div><div class="et_pb_module et_pb_text et_pb_text_6 font  et_pb_text_align_left et_pb_bg_layout_light">
416				
417				
418				
419				
420				<div class="et_pb_text_inner"><p>The Usher Syndrome Society raises awareness through the power of storytelling. By utilizing photojournalism, film, and live events, we share the compelling stories of individuals and families living with Usher syndrome. We believe the more people who know about us, the more we can educate, and the wider our community of support grows.</p>
421<p>Our dedication to funding critical research for treatments is at the heart of our mission. To date, the Usher Syndrome Society has committed over $3.5 million towards finding treatments and, ultimately, a cure for Usher syndrome.</p>
422<p><span style="font-weight: 400;"></span></p></div>
423			</div><div class="et_pb_button_module_wrapper et_pb_button_0_wrapper  et_pb_module ">
424				<a class="et_pb_button et_pb_button_0 button-pill button-fill-light-blue et_pb_bg_layout_light" href="/what-is-ush">What is USH?</a>
425			</div>
426			</div>
427				
428				
429				
430				
431			</div>
432				
433				
434			</div><div class="et_pb_section et_pb_section_2 right-content right-bleed-div dot-selector blur et_pb_with_background et_section_regular" >
435				
436				
437				
438				
439				
440				
441				<div class="et_pb_row et_pb_row_2 internal">
442				<div class="et_pb_column et_pb_column_2_5 et_pb_column_4 image-column  et_pb_css_mix_blend_mode_passthrough">
443				
444				
445				
446				
447				<div class="et_pb_module et_pb_image et_pb_image_2 blur">
448				
449				
450				
451				
452				<span class="et_pb_image_wrap "><img loading="lazy" decoding="async" width="1920" height="2000" src="https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Braille_Home2.jpg" alt="Light shining on blonde woman looking up" title="Mobile-02" srcset="https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Braille_Home2.jpg 1920w, https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Braille_Home2-1280x1333.jpg 1280w, https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Braille_Home2-980x1021.jpg 980w, https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Braille_Home2-480x500.jpg 480w" sizes="auto, (min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) and (max-width: 1280px) 1280px, (min-width: 1281px) 1920px, 100vw" class="wp-image-1187" data-et-multi-view="{&quot;schema&quot;:{&quot;attrs&quot;:{&quot;desktop&quot;:{&quot;src&quot;:&quot;https:\/\/www.ushersyndromesociety.org\/wp-content\/uploads\/2024\/04\/Braille_Home2.jpg&quot;,&quot;alt&quot;:&quot;Light shining on blonde woman looking up&quot;,&quot;title&quot;:&quot;Mobile-02&quot;,&quot;class&quot;:&quot;wp-image-1187&quot;,&quot;srcset&quot;:&quot;https:\/\/www.ushersyndromesociety.org\/wp-content\/uploads\/2024\/04\/Braille_Home2.jpg 1920w, https:\/\/www.ushersyndromesociety.org\/wp-content\/uploads\/2024\/04\/Braille_Home2-1280x1333.jpg 1280w, https:\/\/www.ushersyndromesociety.org\/wp-content\/uploads\/2024\/04\/Braille_Home2-980x1021.jpg 980w, https:\/\/www.ushersyndromesociety.org\/wp-content\/uploads\/2024\/04\/Braille_Home2-480x500.jpg 480w&quot;,&quot;sizes&quot;:&quot;(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) and (max-width: 1280px) 1280px, (min-width: 1281px) 1920px, 100vw&quot;},&quot;tablet&quot;:{&quot;src&quot;:&quot;https:\/\/www.ushersyndromesociety.org\/wp-content\/uploads\/2024\/04\/Mobile-02.png&quot;,&quot;srcset&quot;:&quot;https:\/\/www.ushersyndromesociety.org\/wp-content\/uploads\/2024\/04\/Mobile-02.png 600w, https:\/\/www.ushersyndromesociety.org\/wp-content\/uploads\/2024\/04\/Mobile-02-480x640.png 480w&quot;,&quot;sizes&quot;:&quot;(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) 600px, 100vw&quot;}}},&quot;slug&quot;:&quot;et_pb_image&quot;}" /></span>
453			</div>
454			</div><div class="et_pb_column et_pb_column_3_5 et_pb_column_5 text-div  et_pb_css_mix_blend_mode_passthrough et-last-child">
455				
456				
457				
458				
459				<div class="et_pb_module et_pb_text et_pb_text_7 suptitle  et_pb_text_align_left et_pb_bg_layout_light">
460				
461				
462				
463				
464				<div class="et_pb_text_inner"><p>What we do</p></div>
465			</div><div class="et_pb_module et_pb_text et_pb_text_8 title  et_pb_text_align_left et_pb_bg_layout_light">
466				
467				
468				
469				
470				<div class="et_pb_text_inner"><h3>Working towards a brighter future</h3></div>
471			</div><div class="et_pb_module et_pb_code et_pb_code_4">
472				
473				
474				
475				
476				<div class="et_pb_code_inner"><div x-data="tabs" class="tabs">
477    <div class="tab-groupings">
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485            </div>
486        </template>
487    </div>
488    <div class="tab-content">
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492        <div class="loop">
493        <template x-for="tab in tabs" :key="tab.slug">
494            <div x-show="showTab === tab.grouping" class="tab">
495                <a :href="tab.link" class="tab-link">
496                    <span x-html="tab.title" class="tab-link-sr"></span>
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498               <div class="tab-item">
499                    <div class="image-div">
500                        <img :src="tab.image" class="image-div-image" />
501                    </div>
502                    <div class="text-div">
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504                        <p class="text-div-text" x-html="tab.description">
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572                    link: `/what-we-do/conversations-with-ush/`
573                },
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580                    link: `/what-we-do/docuseries-films/`
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619			</div>
620				
621				
622				
623				
624			</div>
625				
626				
627			</div><div class="et_pb_section et_pb_section_3 two-across-full-section dot-selector et_pb_with_background et_section_regular" >
628				
629				
630				
631				
632				
633				
634				<div class="et_pb_row et_pb_row_3 two-across-full et_pb_equal_columns et_pb_gutters2">
635				<div class="et_pb_column et_pb_column_1_2 et_pb_column_6 image-div  et_pb_css_mix_blend_mode_passthrough">
636				
637				
638				
639				
640				<div class="et_pb_module et_pb_image et_pb_image_3 image">
641				
642				
643				
644				
645				<span class="et_pb_image_wrap "><img loading="lazy" decoding="async" width="2560" height="1703" src="https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Gwen-Geleoc-looking-through-microscope-in-lab-USH-Society-Research-scaled.jpg" alt="An woman in a white lab coat is seated looking into a large microscope in a lab setting" title="Gwen Geleoc looking through microscope in lab USH Society Research" srcset="https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Gwen-Geleoc-looking-through-microscope-in-lab-USH-Society-Research-scaled.jpg 2560w, https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Gwen-Geleoc-looking-through-microscope-in-lab-USH-Society-Research-1280x852.jpg 1280w, https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Gwen-Geleoc-looking-through-microscope-in-lab-USH-Society-Research-980x652.jpg 980w, https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Gwen-Geleoc-looking-through-microscope-in-lab-USH-Society-Research-480x319.jpg 480w" sizes="auto, (min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) and (max-width: 1280px) 1280px, (min-width: 1281px) 2560px, 100vw" class="wp-image-1657" /></span>
646			</div>
647			</div><div class="et_pb_column et_pb_column_1_2 et_pb_column_7 text-div  et_pb_css_mix_blend_mode_passthrough et-last-child">
648				
649				
650				
651				
652				<div class="et_pb_module et_pb_text et_pb_text_9 suptitle  et_pb_text_align_left et_pb_bg_layout_light">
653				
654				
655				
656				
657				<div class="et_pb_text_inner"><h2>Research</h2></div>
658			</div><div class="et_pb_module et_pb_text et_pb_text_10 title  et_pb_text_align_left et_pb_bg_layout_light">
659				
660				
661				
662				
663				<div class="et_pb_text_inner"><h3>We are always searching for the light in the dark</h3></div>
664			</div><div class="et_pb_module et_pb_text et_pb_text_11 font  et_pb_text_align_left et_pb_bg_layout_light">
665				
666				
667				
668				
669				<div class="et_pb_text_inner"><p>The Usher Syndrome Society is dedicated to funding cutting edge vision and hearing research in labs across the globe. With the Guidance of our expert Scientific Advisory Board, we can identify and support the most promising Usher syndrome research and collaborations.</p></div>
670			</div><div class="et_pb_button_module_wrapper et_pb_button_1_wrapper  et_pb_module ">
671				<a class="et_pb_button et_pb_button_1 button button-pill button-fill-light-blue et_pb_bg_layout_light" href="/research">Our Research Grants</a>
672			</div><div class="et_pb_button_module_wrapper et_pb_button_2_wrapper  et_pb_module ">
673				<a class="et_pb_button et_pb_button_2 button button-pill button-fill-transparent et_pb_bg_layout_light" href="/donate">Donate</a>
674			</div><div class="et_pb_module et_pb_code et_pb_code_5 button-container">
675				
676				
677				
678				
679				<div class="et_pb_code_inner">
679<script>
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698			</div>
699			</div>
700				
701				
702				
703				
704			</div>
705				
706				
707			</div><div class="et_pb_section et_pb_section_4 bento dot-selector et_pb_with_background et_section_regular" >
708				
709				
710				
711				
712				
713				
714				<div class="et_pb_row et_pb_row_4 internal">
715				<div class="et_pb_column et_pb_column_1_2 et_pb_column_8  et_pb_css_mix_blend_mode_passthrough" id="text-div">
716				
717				
718				
719				
720				<div class="et_pb_module et_pb_text et_pb_text_12 suptitle  et_pb_text_align_left et_pb_bg_layout_light">
721				
722				
723				
724				
725				<div class="et_pb_text_inner"><h2>News &amp; Events</h2></div>
726			</div><div class="et_pb_module et_pb_text et_pb_text_13 title  et_pb_text_align_left et_pb_bg_layout_light">
727				
728				
729				
730				
731				<div class="et_pb_text_inner"><p>Help us make the invisible, visible</p></div>
732			</div><div class="et_pb_module et_pb_text et_pb_text_14 font  et_pb_text_align_left et_pb_bg_layout_light">
733				
734				
735				
736				
737				<div class="et_pb_text_inner"><p>Check out our upcoming events, see the latest research updates, or support a personal fundraiser for a member of the Usher Syndrome community!</p></div>
738			</div><div class="et_pb_module et_pb_code et_pb_code_6">
739				
740				
741				
742				
743				<div class="et_pb_code_inner"><div id="box">
744    <div id="left">
745                    <div class="highlight-box">
746                <a href="https://www.ushersyndromesociety.org/research" class="bento-link"></a>
747                <div class="image">
748                    <div class="bento-box">
749                        <a href="https://www.ushersyndromesociety.org/research">
750                            <img decoding="async" loading="lazy"
751                                 src="https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/USH-Society-Research-Updates-Monte-Westerfield.jpg"
752                                 alt=""
753                                 title="Research Updates" />
754                        </a>
755                    </div>
756                </div>
757                <div class="internal">
758                    <p class="">
759                        Research Updates
760                    </p>
761                    <svg xmlns="https://www.w3.org/2000/svg"
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769                        <path d="M 15.5 1.600000381469727 C 11.78717994689941 1.600000381469727 8.296579360961914 3.04585075378418 5.671220779418945 5.671220779418945 C 3.04585075378418 8.296579360961914 1.600000381469727 11.78717994689941 1.600000381469727 15.5 C 1.600000381469727 19.21282005310059 3.04585075378418 22.70341873168945 5.671220779418945 25.32878112792969 C 8.296579360961914 27.95414924621582 11.78717994689941 29.39999961853027 15.5 29.39999961853027 C 19.21282005310059 29.39999961853027 22.70341873168945 27.95414924621582 25.32878112792969 25.32878112792969 C 27.95414924621582 22.70341873168945 29.39999961853027 19.21282005310059 29.39999961853027 15.5 C 29.39999961853027 11.78717994689941 27.95414924621582 8.296579360961914 25.32878112792969 5.671220779418945 C 22.70341873168945 3.04585075378418 19.21282005310059 1.600000381469727 15.5 1.600000381469727 M 15.5 0 C 24.06040954589844 0 31 6.939590454101562 31 15.5 C 31 24.06040954589844 24.06040954589844 31 15.5 31 C 6.939590454101562 31 0 24.06040954589844 0 15.5 C 0 6.939590454101562 6.939590454101562 0 15.5 0 Z" stroke="none" fill="#fff">
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772                        <path id="Path_4460" data-name="Path 4460" d="M4.319.156.259,3.5a.732.732,0,0,0-.1,1.011.747.747,0,0,0,1.012.1L4.058,2.231v10.9a.717.717,0,1,0,1.433,0V2.231L8.38,4.612a.754.754,0,0,0,1.011-.1A.732.732,0,0,0,9.29,3.5L5.23.156a.741.741,0,0,0-.911,0Z" transform="translate(300.355 4157.5) rotate(90)" fill="#6d87c3" stroke="#6d87c3" stroke-width="0.2">
773                        </path>
774                        </g>
775                    </svg>
776                </div>
777                <div class="mobile">
778                    <p class="">
779                        Research Updates
780                        <svg xmlns="https://www.w3.org/2000/svg"
781                             width="31"
782                             height="31"
783                             viewBox="0 0 31 31">
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785                            <g id="Path_4465" data-name="Path 4465" transform="translate(278 4147)" fill="#fff">
786                            <path d="M 15.5 30.20000076293945 C 11.57349014282227 30.20000076293945 7.881999969482422 28.67093086242676 5.10552978515625 25.89447021484375 C 2.329070091247559 23.11800003051758 0.800000011920929 19.42650985717773 0.800000011920929 15.5 C 0.800000011920929 11.57349014282227 2.329070091247559 7.881999969482422 5.10552978515625 5.10552978515625 C 7.881999969482422 2.329070091247559 11.57349014282227 0.800000011920929 15.5 0.800000011920929 C 19.42650985717773 0.800000011920929 23.11800003051758 2.329070091247559 25.89447021484375 5.10552978515625 C 28.67093086242676 7.881999969482422 30.20000076293945 11.57349014282227 30.20000076293945 15.5 C 30.20000076293945 19.42650985717773 28.67093086242676 23.11800003051758 25.89447021484375 25.89447021484375 C 23.11800003051758 28.67093086242676 19.42650985717773 30.20000076293945 15.5 30.20000076293945 Z" stroke="none">
787                            </path>
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790                            </g>
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793                            </g>
794                        </svg>
795                    </p>
796                </div>
797            </div>
798                    <div class="highlight-box">
799                <a href="https://www.ushersyndromesociety.org/personal-fundraisers/" class="bento-link"></a>
800                <div class="image">
801                    <div class="bento-box">
802                        <a href="https://www.ushersyndromesociety.org/personal-fundraisers/">
803                            <img decoding="async" loading="lazy"
804                                 src="https://www.ushersyndromesociety.org/wp-content/uploads/2025/01/michael-mullarkey-Featured-photo.jpg"
805                                 alt="A portrait photo of Michael Mullarkey wearing a vest, button down. He has light blonde hair and is smiling"
806                                 title="Personal Fundraisers" />
807                        </a>
808                    </div>
809                </div>
810                <div class="internal">
811                    <p class="">
812                        Personal Fundraisers
813                    </p>
814                    <svg xmlns="https://www.w3.org/2000/svg"
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816                         height="31"
817                         viewBox="0 0 31 31">
818                        <g id="Group_7878" data-name="Group 7878" transform="translate(-278 -4147)">
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820                        <path d="M 15.5 30.20000076293945 C 11.57349014282227 30.20000076293945 7.881999969482422 28.67093086242676 5.10552978515625 25.89447021484375 C 2.329070091247559 23.11800003051758 0.800000011920929 19.42650985717773 0.800000011920929 15.5 C 0.800000011920929 11.57349014282227 2.329070091247559 7.881999969482422 5.10552978515625 5.10552978515625 C 7.881999969482422 2.329070091247559 11.57349014282227 0.800000011920929 15.5 0.800000011920929 C 19.42650985717773 0.800000011920929 23.11800003051758 2.329070091247559 25.89447021484375 5.10552978515625 C 28.67093086242676 7.881999969482422 30.20000076293945 11.57349014282227 30.20000076293945 15.5 C 30.20000076293945 19.42650985717773 28.67093086242676 23.11800003051758 25.89447021484375 25.89447021484375 C 23.11800003051758 28.67093086242676 19.42650985717773 30.20000076293945 15.5 30.20000076293945 Z" stroke="none">
821                        </path>
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824                        </g>
825                        <path id="Path_4460" data-name="Path 4460" d="M4.319.156.259,3.5a.732.732,0,0,0-.1,1.011.747.747,0,0,0,1.012.1L4.058,2.231v10.9a.717.717,0,1,0,1.433,0V2.231L8.38,4.612a.754.754,0,0,0,1.011-.1A.732.732,0,0,0,9.29,3.5L5.23.156a.741.741,0,0,0-.911,0Z" transform="translate(300.355 4157.5) rotate(90)" fill="#6d87c3" stroke="#6d87c3" stroke-width="0.2">
826                        </path>
827                        </g>
828                    </svg>
829                </div>
830                <div class="mobile">
831                    <p class="">
832                        Personal Fundraisers
833                        <svg xmlns="https://www.w3.org/2000/svg"
834                             width="31"
835                             height="31"
836                             viewBox="0 0 31 31">
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840                            </path>
841                            <path d="M 15.5 1.600000381469727 C 11.78717994689941 1.600000381469727 8.296579360961914 3.04585075378418 5.671220779418945 5.671220779418945 C 3.04585075378418 8.296579360961914 1.600000381469727 11.78717994689941 1.600000381469727 15.5 C 1.600000381469727 19.21282005310059 3.04585075378418 22.70341873168945 5.671220779418945 25.32878112792969 C 8.296579360961914 27.95414924621582 11.78717994689941 29.39999961853027 15.5 29.39999961853027 C 19.21282005310059 29.39999961853027 22.70341873168945 27.95414924621582 25.32878112792969 25.32878112792969 C 27.95414924621582 22.70341873168945 29.39999961853027 19.21282005310059 29.39999961853027 15.5 C 29.39999961853027 11.78717994689941 27.95414924621582 8.296579360961914 25.32878112792969 5.671220779418945 C 22.70341873168945 3.04585075378418 19.21282005310059 1.600000381469727 15.5 1.600000381469727 M 15.5 0 C 24.06040954589844 0 31 6.939590454101562 31 15.5 C 31 24.06040954589844 24.06040954589844 31 15.5 31 C 6.939590454101562 31 0 24.06040954589844 0 15.5 C 0 6.939590454101562 6.939590454101562 0 15.5 0 Z" stroke="none" fill="#fff">
842                            </path>
843                            </g>
844                            <path id="Path_4460" data-name="Path 4460" d="M4.319.156.259,3.5a.732.732,0,0,0-.1,1.011.747.747,0,0,0,1.012.1L4.058,2.231v10.9a.717.717,0,1,0,1.433,0V2.231L8.38,4.612a.754.754,0,0,0,1.011-.1A.732.732,0,0,0,9.29,3.5L5.23.156a.741.741,0,0,0-.911,0Z" transform="translate(300.355 4157.5) rotate(90)" fill="#6d87c3" stroke="#6d87c3" stroke-width="0.2">
845                            </path>
846                            </g>
847                        </svg>
848                    </p>
849                </div>
850            </div>
851            </div>
852    <div id="right">
853                    <div class="highlight-box">
854                <a href="https://www.ushersyndromesociety.org/everysecondcounts/" class="bento-link"></a>
855                <div class="image">
856                    <div class="bento-box">
857                        <a href="https://www.ushersyndromesociety.org/everysecondcounts/">
858                            <img decoding="async" loading="lazy"
859                                 src="https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Rebecca-Alexander-Every-Second-Counts.jpg"
860                                 alt="An image of a woman, Rebecca Alexander, looking out of a subway car as she passes New York City."
861                                 title="Every Second Counts Campaign" />
862                        </a>
863                    </div>
864                </div>
865                <div class="internal">
866                    <p class="">
867                        Every Second Counts Campaign
868                    </p>
869                    <svg xmlns="https://www.w3.org/2000/svg"
870                         width="31"
871                         height="31"
872                         viewBox="0 0 31 31">
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875                        <path d="M 15.5 30.20000076293945 C 11.57349014282227 30.20000076293945 7.881999969482422 28.67093086242676 5.10552978515625 25.89447021484375 C 2.329070091247559 23.11800003051758 0.800000011920929 19.42650985717773 0.800000011920929 15.5 C 0.800000011920929 11.57349014282227 2.329070091247559 7.881999969482422 5.10552978515625 5.10552978515625 C 7.881999969482422 2.329070091247559 11.57349014282227 0.800000011920929 15.5 0.800000011920929 C 19.42650985717773 0.800000011920929 23.11800003051758 2.329070091247559 25.89447021484375 5.10552978515625 C 28.67093086242676 7.881999969482422 30.20000076293945 11.57349014282227 30.20000076293945 15.5 C 30.20000076293945 19.42650985717773 28.67093086242676 23.11800003051758 25.89447021484375 25.89447021484375 C 23.11800003051758 28.67093086242676 19.42650985717773 30.20000076293945 15.5 30.20000076293945 Z" stroke="none">
876                        </path>
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878                        </path>
879                        </g>
880                        <path id="Path_4460" data-name="Path 4460" d="M4.319.156.259,3.5a.732.732,0,0,0-.1,1.011.747.747,0,0,0,1.012.1L4.058,2.231v10.9a.717.717,0,1,0,1.433,0V2.231L8.38,4.612a.754.754,0,0,0,1.011-.1A.732.732,0,0,0,9.29,3.5L5.23.156a.741.741,0,0,0-.911,0Z" transform="translate(300.355 4157.5) rotate(90)" fill="#6d87c3" stroke="#6d87c3" stroke-width="0.2">
881                        </path>
882                        </g>
883                    </svg>
884                </div>
885                <div class="mobile">
886                    <p class="">
887                        Every Second Counts Campaign
888                        <svg xmlns="https://www.w3.org/2000/svg"
889                             width="31"
890                             height="31"
891                             viewBox="0 0 31 31">
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895                            </path>
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900                            </path>
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902                        </svg>
903                    </p>
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913				
914				
915				
916				
917				<div class="et_pb_module et_pb_image et_pb_image_4 bento-image">
918				
919				
920				
921				
922				<span class="et_pb_image_wrap "><img loading="lazy" decoding="async" width="1920" height="2000" src="https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Braille_Home3_Dark.png" alt="" title="Mobile-03" srcset="https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Braille_Home3_Dark.png 1920w, https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Braille_Home3_Dark-1280x1333.png 1280w, https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Braille_Home3_Dark-980x1021.png 980w, https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Braille_Home3_Dark-480x500.png 480w" sizes="auto, (min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) and (max-width: 1280px) 1280px, (min-width: 1281px) 1920px, 100vw" class="wp-image-1328" data-et-multi-view="{&quot;schema&quot;:{&quot;attrs&quot;:{&quot;desktop&quot;:{&quot;src&quot;:&quot;https:\/\/www.ushersyndromesociety.org\/wp-content\/uploads\/2024\/04\/Braille_Home3_Dark.png&quot;,&quot;alt&quot;:&quot;&quot;,&quot;title&quot;:&quot;Mobile-03&quot;,&quot;class&quot;:&quot;wp-image-1328&quot;,&quot;srcset&quot;:&quot;https:\/\/www.ushersyndromesociety.org\/wp-content\/uploads\/2024\/04\/Braille_Home3_Dark.png 1920w, https:\/\/www.ushersyndromesociety.org\/wp-content\/uploads\/2024\/04\/Braille_Home3_Dark-1280x1333.png 1280w, https:\/\/www.ushersyndromesociety.org\/wp-content\/uploads\/2024\/04\/Braille_Home3_Dark-980x1021.png 980w, https:\/\/www.ushersyndromesociety.org\/wp-content\/uploads\/2024\/04\/Braille_Home3_Dark-480x500.png 480w&quot;,&quot;sizes&quot;:&quot;(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) and (max-width: 1280px) 1280px, (min-width: 1281px) 1920px, 100vw&quot;},&quot;phone&quot;:{&quot;src&quot;:&quot;https:\/\/www.ushersyndromesociety.org\/wp-content\/uploads\/2024\/04\/Mobile-03.png&quot;,&quot;srcset&quot;:&quot;https:\/\/www.ushersyndromesociety.org\/wp-content\/uploads\/2024\/04\/Mobile-03.png 600w, https:\/\/www.ushersyndromesociety.org\/wp-content\/uploads\/2024\/04\/Mobile-03-480x640.png 480w&quot;,&quot;sizes&quot;:&quot;(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) 600px, 100vw&quot;}}},&quot;slug&quot;:&quot;et_pb_image&quot;}" /></span>
923			</div>
924			</div>
925				
926				
927				
928				
929			</div>
930				
931				
932			</div><div class="et_pb_section et_pb_section_5 person-slider dot-selector et_pb_with_background et_section_regular" >
933				
934				
935				
936				
937				
938				
939				<div class="et_pb_row et_pb_row_5 person">
940				<div class="et_pb_column et_pb_column_1_2 et_pb_column_10 image-div  et_pb_css_mix_blend_mode_passthrough">
941				
942				
943				
944				
945				<div class="et_pb_module et_pb_image et_pb_image_5">
946				
947				
948				
949				
950				<span class="et_pb_image_wrap "><img loading="lazy" decoding="async" width="2560" height="2560" src="https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Owen-Ziegler_Diagnosed-at-14-months_Type-1D-scaled.jpg" alt="A black and white image from our Shine a light on Usher syndrome exhibit showing a young child wearing a headband looking up and off to the side. The child&#039;s face is illuminated by light. " title="Shine a Light on Usher Syndrome Owen Ziegler" srcset="https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Owen-Ziegler_Diagnosed-at-14-months_Type-1D-scaled.jpg 2560w, https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Owen-Ziegler_Diagnosed-at-14-months_Type-1D-1280x1280.jpg 1280w, https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Owen-Ziegler_Diagnosed-at-14-months_Type-1D-980x980.jpg 980w, https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Owen-Ziegler_Diagnosed-at-14-months_Type-1D-480x480.jpg 480w" sizes="auto, (min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) and (max-width: 1280px) 1280px, (min-width: 1281px) 2560px, 100vw" class="wp-image-2083" /></span>
951			</div>
952			</div><div class="et_pb_column et_pb_column_1_2 et_pb_column_11 bio-div  et_pb_css_mix_blend_mode_passthrough et-last-child">
953				
954				
955				
956				
957				<div class="et_pb_module et_pb_text et_pb_text_15 name  et_pb_text_align_left et_pb_bg_layout_light">
958				
959				
960				
961				
962				<div class="et_pb_text_inner"><p>Owen Ziegler</p></div>
963			</div><div class="et_pb_module et_pb_text et_pb_text_16 bio  et_pb_text_align_left et_pb_bg_layout_light">
964				
965				
966				
967				
968				<div class="et_pb_text_inner"><p><span>I was diagnosed with USH 1D when I was 14 months old. My family and I are learning more about Usher syndrome each day. I have profound hearing loss and use my bilateral Cochlear Implants as a tool to hear.</span></p></div>
969			</div>
970			</div>
971				
972				
973				
974				
975			</div><div class="et_pb_row et_pb_row_6 person">
976				<div class="et_pb_column et_pb_column_1_2 et_pb_column_12 image-div  et_pb_css_mix_blend_mode_passthrough">
977				
978				
979				
980				
981				<div class="et_pb_module et_pb_image et_pb_image_6">
982				
983				
984				
985				
986				<span class="et_pb_image_wrap "><img loading="lazy" decoding="async" width="2560" height="2560" src="https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Rene-Pellerin_Diagnosed-age-21_Type-1-scaled.jpg" alt="A black and white image from our shine a light on Usher syndrome exhibit showing an older man holding a cane in one hand. The man has white hair, a white mustache, and wears black rimmed glasses." title="Rene Pellerin_Diagnosed age 21_Type 1" srcset="https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Rene-Pellerin_Diagnosed-age-21_Type-1-scaled.jpg 2560w, https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Rene-Pellerin_Diagnosed-age-21_Type-1-1280x1280.jpg 1280w, https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Rene-Pellerin_Diagnosed-age-21_Type-1-980x980.jpg 980w, https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Rene-Pellerin_Diagnosed-age-21_Type-1-480x480.jpg 480w" sizes="auto, (min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) and (max-width: 1280px) 1280px, (min-width: 1281px) 2560px, 100vw" class="wp-image-2086" /></span>
987			</div>
988			</div><div class="et_pb_column et_pb_column_1_2 et_pb_column_13 bio-div  et_pb_css_mix_blend_mode_passthrough et-last-child">
989				
990				
991				
992				
993				<div class="et_pb_module et_pb_text et_pb_text_17 name  et_pb_text_align_left et_pb_bg_layout_light">
994				
995				
996				
997				
998				<div class="et_pb_text_inner"><p><span>Rene Pellerin</span></p></div>
999			</div><div class="et_pb_module et_pb_text et_pb_text_18 bio  et_pb_text_align_left et_pb_bg_layout_light">
1000				
1001				
1002				
1003				
1004				<div class="et_pb_text_inner"><p>I grew up in a family of seven children, with one of my brothers also having Usher syndrome.<span> I am the father of six and married to my wife, and interpreter, Joan, for over 34 years.</span></p></div>
1005			</div>
1006			</div>
1007				
1008				
1009				
1010				
1011			</div><div class="et_pb_row et_pb_row_7 person">
1012				<div class="et_pb_column et_pb_column_1_2 et_pb_column_14 image-div  et_pb_css_mix_blend_mode_passthrough">
1013				
1014				
1015				
1016				
1017				<div class="et_pb_module et_pb_image et_pb_image_7">
1018				
1019				
1020				
1021				
1022				<span class="et_pb_image_wrap "><img loading="lazy" decoding="async" width="2560" height="2560" src="https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Charlotte-Jones_Diagnosed-age-3_Type-1D-scaled.jpg" alt="" title="Charlotte Jones_Diagnosed age 3_Type 1D" srcset="https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Charlotte-Jones_Diagnosed-age-3_Type-1D-scaled.jpg 2560w, https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Charlotte-Jones_Diagnosed-age-3_Type-1D-1280x1280.jpg 1280w, https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Charlotte-Jones_Diagnosed-age-3_Type-1D-980x980.jpg 980w, https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Charlotte-Jones_Diagnosed-age-3_Type-1D-480x480.jpg 480w" sizes="auto, (min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) and (max-width: 1280px) 1280px, (min-width: 1281px) 2560px, 100vw" class="wp-image-1663" /></span>
1023			</div>
1024			</div><div class="et_pb_column et_pb_column_1_2 et_pb_column_15 bio-div  et_pb_css_mix_blend_mode_passthrough et-last-child">
1025				
1026				
1027				
1028				
1029				<div class="et_pb_module et_pb_text et_pb_text_19 name  et_pb_text_align_left et_pb_bg_layout_light">
1030				
1031				
1032				
1033				
1034				<div class="et_pb_text_inner"><p>Charlotte Jones</p></div>
1035			</div><div class="et_pb_module et_pb_text et_pb_text_20 bio  et_pb_text_align_left et_pb_bg_layout_light">
1036				
1037				
1038				
1039				
1040				<div class="et_pb_text_inner"><p><span>I recently graduated from The University of Birmingham, UK,Masters Degree. This is a massive achievement I am proud of despite having to overcome the daily challenges that living with Usher syndrome presents. </span></p></div>
1041			</div>
1042			</div>
1043				
1044				
1045				
1046				
1047			</div><div class="et_pb_row et_pb_row_8 person">
1048				<div class="et_pb_column et_pb_column_1_2 et_pb_column_16 image-div  et_pb_css_mix_blend_mode_passthrough">
1049				
1050				
1051				
1052				
1053				<div class="et_pb_module et_pb_image et_pb_image_8">
1054				
1055				
1056				
1057				
1058				<span class="et_pb_image_wrap "><img loading="lazy" decoding="async" width="2560" height="2560" src="https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Trevor-Turner_Diagnosed-age-19_Type-2A-2-scaled.jpg" alt="A black and white image from our shine a light on Usher syndrome exhibit showing a young man with blonde hair sitting looking straight at the camera. He is half in shadow and half in light." title="Usher Syndrome Conference, Philadelphia, PA July 13, 1019" srcset="https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Trevor-Turner_Diagnosed-age-19_Type-2A-2-scaled.jpg 2560w, https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Trevor-Turner_Diagnosed-age-19_Type-2A-2-1280x1280.jpg 1280w, https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Trevor-Turner_Diagnosed-age-19_Type-2A-2-980x980.jpg 980w, https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Trevor-Turner_Diagnosed-age-19_Type-2A-2-480x480.jpg 480w" sizes="auto, (min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) and (max-width: 1280px) 1280px, (min-width: 1281px) 2560px, 100vw" class="wp-image-2091" /></span>
1059			</div>
1060			</div><div class="et_pb_column et_pb_column_1_2 et_pb_column_17 bio-div  et_pb_css_mix_blend_mode_passthrough et-last-child">
1061				
1062				
1063				
1064				
1065				<div class="et_pb_module et_pb_text et_pb_text_21 name  et_pb_text_align_left et_pb_bg_layout_light">
1066				
1067				
1068				
1069				
1070				<div class="et_pb_text_inner"><p>Trevor Turner</p></div>
1071			</div><div class="et_pb_module et_pb_text et_pb_text_22 bio  et_pb_text_align_left et_pb_bg_layout_light">
1072				
1073				
1074				
1075				
1076				<div class="et_pb_text_inner"><p><span>When I was diagnosed at 19, I realized that I had a limited amount of time with which I could literally “see” the world. This motivated me to seek travel opportunities, study abroad, and work abroad.</span></p></div>
1077			</div>
1078			</div>
1079				
1080				
1081				
1082				
1083			</div><div class="et_pb_row et_pb_row_9 person">
1084				<div class="et_pb_column et_pb_column_1_2 et_pb_column_18 image-div  et_pb_css_mix_blend_mode_passthrough">
1085				
1086				
1087				
1088				
1089				<div class="et_pb_module et_pb_image et_pb_image_9">
1090				
1091				
1092				
1093				
1094				<span class="et_pb_image_wrap "><img loading="lazy" decoding="async" width="2560" height="2560" src="https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Rosann-Rossi_Diagnosed-age-5_Type-2A-scaled.jpg" alt="A black and white from our shine a light on usher syndrome exhibit showing a portrait of a woman&#039;s face. She has short hair and she looks off to the side slightly. Half of her face is in shadow and the other half is in light." title="Rosann Rossi_Diagnosed age 5_Type 2A" srcset="https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Rosann-Rossi_Diagnosed-age-5_Type-2A-scaled.jpg 2560w, https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Rosann-Rossi_Diagnosed-age-5_Type-2A-1280x1280.jpg 1280w, https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Rosann-Rossi_Diagnosed-age-5_Type-2A-980x980.jpg 980w, https://www.ushersyndromesociety.org/wp-content/uploads/2024/04/Rosann-Rossi_Diagnosed-age-5_Type-2A-480x480.jpg 480w" sizes="auto, (min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) and (max-width: 1280px) 1280px, (min-width: 1281px) 2560px, 100vw" class="wp-image-2094" /></span>
1095			</div>
1096			</div><div class="et_pb_column et_pb_column_1_2 et_pb_column_19 bio-div  et_pb_css_mix_blend_mode_passthrough et-last-child">
1097				
1098				
1099				
1100				
1101				<div class="et_pb_module et_pb_text et_pb_text_23 name  et_pb_text_align_left et_pb_bg_layout_light">
1102				
1103				
1104				
1105				
1106				<div class="et_pb_text_inner"><p><span>Rosann Rossi</span></p></div>
1107			</div><div class="et_pb_module et_pb_text et_pb_text_24 bio  et_pb_text_align_left et_pb_bg_layout_light">
1108				
1109				
1110				
1111				
1112				<div class="et_pb_text_inner"><p><span>My hopes are that I never stop learning how to adjust to the challenges presented to me and I can continue to live an independent lifestyle. &#8216;Smile and make the best of everyday, laughter is a must!&#8217; </span></p></div>
1113			</div>
1114			</div>
1115				
1116				
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1118				
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1120				
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1136				
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1139				
1140				<div class="et_pb_text_inner"><p>Help us find treatments and a cure.</p></div>
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1189<img loading="lazy" decoding="async" width="5720" height="5720" src="https://www.ushersyndromesociety.org/wp-content/uploads/2024/01/Usher-Syndrome-Society-Logo-White.png" alt="A grid of white and light blue dots forming the Usher Syndrome Society Logo" title="Usher Syndrome Society Logo White" srcset="https://www.ushersyndromesociety.org/wp-content/uploads/2024/01/Usher-Syndrome-Society-Logo-White.png 5720w, https://www.ushersyndromesociety.org/wp-content/uploads/2024/01/Usher-Syndrome-Society-Logo-White-1280x1280.png 1280w, https://www.ushersyndromesociety.org/wp-content/uploads/2024/01/Usher-Syndrome-Society-Logo-White-980x980.png 980w, https://www.ushersyndromesociety.org/wp-content/uploads/2024/01/Usher-Syndrome-Society-Logo-White-480x480.png 480w" sizes="auto, (min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) and (max-width: 1280px) 1280px, (min-width: 1281px) 5720px, 100vw" class="wp-image-160" /></span></a>
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1195				<div class="et_pb_text_inner"><p><strong>Usher Syndrome Society</strong></p>
1196<p>1544 Central Avenue</p>
1197<p>Needham, MA 02492</p></div>
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1221'' + 
1222'.email-registration-form .field{padding: 4px 0;}' + 
1223'' + 
1224'.email-registration-form .consent{padding-bottom: 4px;}' + 
1225'' + 
1226'.email-registration-form .field .required-star{color: #aa0000; ' + 
1227'                display: inline-block; ' + 
1228'                margin-left: 5px;}' + 
1229'' + 
1230'.email-registration-form .field .checkboxes{max-width:275px;' + 
1231'                border: 1px solid #A9A9A9;' + 
1232'                -webkit-transition: all .3s ease-out;' + 
1233'                -moz-transition: all .3s ease-out;' + 
1234'                transition: all .3s ease-out;}' + 
1235'' + 
1236'.email-registration-form .field .checkbox{display:block;' + 
1237'                position:relative;' + 
1238'                -moz-box-sizing:border-box;' + 
1239'                box-sizing:border-box;' + 
1240'                height:30px;' + 
1241'                line-height:26px;' + 
1242'                padding:2px 28px 2px 8px;' + 
1243'                border-bottom:1px solid rgba(0,0,0,0.1);' + 
1244'                color:#404040;  ' + 
1245'                overflow:hidden;' + 
1246'                text-decoration:none; }' + 
1247'' + 
1248'.email-registration-form .field .checkbox input{opacity:0.01;' + 
1249'                position:absolute;' + 
1250'                left:-50px;  ' + 
1251'                z-index:-5;}' + 
1252'' + 
1253'.email-registration-form .field .checkbox:last-child{border-bottom:none;}' + 
1254'' + 
1255'.email-registration-form .field .checkbox.selected{background: rgb(50, 142, 253);' + 
1256'                color:#fff; }' + 
1257'' + 
1258'.email-registration-form .field .checkbox.selected:before{color:#fff;' + 
1259'                line-height:30px;' + 
1260'                position:absolute;' + 
1261'                right:10px; }' + 
1262'' + 
1263'.email-registration-form .field input{padding: 4px; ' + 
1264'                width: 275px;}' + 
1265'' + 
1266'.email-registration-form .errors{border: 1px solid #900;' + 
1267'                color: #900;  ' + 
1268'                padding: 10px;}' + 
1269'' + 
1270'.email-registration-form .hidden{display: none;}' + 
1271'' + 
1272'.btn-group .btn-submit-email{padding: 4px 10px;}' + 
1273'' + 
1274'input, select, textarea, button{font-family: inherit;}' + 
1275'' + 
1276'</style>' + 
1277'' + 
1278'<div id="email-registration-form-container">' + 
1279'  <form id="email-registration-form" class="email-registration-form" method="post" action="javascript:void(0)">' + 
1280'    <div class="errors hidden"></div>' + 
1281'    <div class="section contact">' + 
1282'      <div class="field text first-name required" >' + 
1283'<label for="first-name"><span class="label">First Name</span><span class="required-star">*</span></label>' + 
1284'<input id="first-name" name="first-name" class="required" type="text"></input>' + 
1285'</div>' + 
1286'<div class="field text last-name required" >' + 
1287'<label for="last-name"><span class="label">Last Name</span><span class="required-star">*</span></label>' + 
1288'<input id="last-name" name="last-name" class="required" type="text"></input>' + 
1289'</div>' + 
1290'<div class="field email email-address required" >' + 
1291'<label for="email-address"><span class="label">Email</span><span class="required-star">*</span></label>' + 
1292'<input id="email-address" name="email-address" class="email required" type="email" placeholder="[email protected]"></input>' + 
1293'</div>' + 
1294'</div>' + 
1295'    ' + 
1296'    ' + 
1297'    <div class="btn-group">' + 
1298'      <input class="btn btn-submit btn-submit-email" type="submit" value="Sign up"/>' + 
1299'    </div>' + 
1300'  </form>' + 
1301'</div>' + 
1302'' + 
1303'' +  '';var successHtml145408 = '<div class=\'donation-success\'>' +
1304                                                       '  <p>Your email has been added to our mailing list!</p> ' + 
1305                                                        '   ' + 
1306                                                        '</div>';( function($) {if (!Bloomerang.useEmailId('145408')) { 
1307                                    html145408 = '<p style="color: red">Only one email sign-up form can be used on each page.</p> ';
1308                                }
1309                                Bloomerang.Util.requireStripe();if (jQuery('#bloomerangForm145408').length) {
1310                        
1311                        jQuery('#bloomerangForm145408').after(html145408);
1312                        
1313                        
1314                        
1315                        
1316                    };
1317                    if (Bloomerang.emailSignupFormLoaded) {
1318                                            return false;
1319                                        }
1320                                        Bloomerang.emailSignupFormLoaded = true;
1321                     jQuery('.email-registration-form .section.captcha').attr('style', 'display: none'); 
1322                    
1323                    Bloomerang.useKey('pub_c05350b6-cec2-11e9-9f3d-0aa640fb8062');
1324
1325        // Register proper callbacks for various stages/outcomes of submission
1326        Bloomerang.Widget.Email.OnSubmit = function (args) {
1327            jQuery(".btn-submit-email").val("Registering...").prop("disabled", true).addClass("disabled");
1328            var val = function (selector) { return jQuery(selector).val(); };
1329            Bloomerang.Account
1330                    .individual()
1331                    .firstName(val(".email-registration-form #first-name"))
1332                    .lastName(val(".email-registration-form #last-name"))
1333                    .homeEmail(val(".email-registration-form #email-address"))
1334                    .applyEmailSignupCustomFields();
1335                    
1336           Bloomerang.Interaction.applyEmailSignupCustomFields();
1337        };
1338        Bloomerang.ValidateEmailSignupFormCaptcha = function() {
1339            if (typeof(grecaptcha) !== "undefined" && jQuery("#captcha" + Bloomerang.Data.WidgetIds.EmailSignup).children().length) {
1340                var captchaResponse = grecaptcha.getResponse(jQuery(".email-registration-form").data("captcha-id"));
1341                if (captchaResponse) {
1342                    jQuery(".email-registration-form .noCaptchaResponseError").hide();
1343                    Bloomerang.captchaResponse(captchaResponse);
1344                    return true;
1345                } else {
1346                    jQuery(".email-registration-form .noCaptchaResponseError").show();
1347                    return false;
1348                }
1349            } else return true;
1350        };
1351        Bloomerang.Api.OnSuccess = Bloomerang.Widget.Email.OnSuccess = function (response) {
1352            jQuery("#email-registration-form-container").html(successHtml145408);
1353            var distance = 100;
1354            var offset = jQuery("#email-registration-form-container").offset().top;
1355            var offsetTop = offset > distance ? offset - distance : offset;
1356       jQuery('html, body').animate({ scrollTop : offsetTop}, 500);
1357        };
1358        Bloomerang.Api.OnError = Bloomerang.Widget.Email.OnError = function (response) {
1359            jQuery(".btn-submit-email").val("Register").prop("disabled", false).removeClass("disabled");
1360            jQuery("#email-registration-form-container .errors").removeClass("hidden").html(response.Message);
1361            var distance = 100;
1362            var offset = jQuery("#email-registration-form-container .errors").offset().top;
1363            var offsetTop = offset > distance ? offset - distance : offset;
1364       jQuery('html, body').animate({ scrollTop : offsetTop}, 500);
1365            if (typeof(grecaptcha) !== "undefined" && jQuery("#captcha" + Bloomerang.Data.WidgetIds.EmailSignup).children().length) {
1366              grecaptcha.reset(jQuery(".email-registration-form").data("captcha-id"));
1367            }
1368        };
1369        
1370        Bloomerang.Util.applyEmailSignupCustomFields = function (obj, type) {
1371        
1372            // Clear any fields from a previous failed submission
1373            obj.clearCustomFields();
1374        
1375            // Apply all <input> (not multiselect), <select> and <textarea> fields
1376            jQuery(".email-registration-form .section.custom-fields :input:not(a > input, select)[id*=" + type + "]").each(function() {
1377                if (jQuery(this).val().hasValue()) {
1378                    obj.customFreeformField(jQuery(this).attr("id").toUntypedValue(), jQuery(this).val());
1379                }
1380            });
1381            
1382            // Apply all <select> fields
1383            jQuery(".email-registration-form .section.custom-fields select[id*=" + type + "]").each(function() {
1384                if (jQuery(this).val().hasValue()) {
1385                    obj.customPickField(jQuery(this).attr("id").toUntypedValue(), jQuery(this).val());
1386                }
1387            });
1388                
1389            // Apply all multiselect fields
1390            jQuery(".email-registration-form .section.custom-fields .checkboxes[id*=" + type + "]").each(function() {
1391                obj.customPickField(jQuery(this).attr("id").toUntypedValue(),
1392                jQuery.map(jQuery(this).children(".checkbox.selected"), function(v) { return jQuery(v).attr("data-id"); }));
1393            });
1394        };
1395        
1396        String.prototype.hasValue = function() {
1397            return (this && jQuery.trim(this)); //IE8 doesn't have a native trim function
1398        };
1399        
1400        Bloomerang.Account.applyEmailSignupCustomFields = function () {
1401            Bloomerang.Util.applyEmailSignupCustomFields(this, "Account");
1402            return this;
1403        };
1404        
1405        Bloomerang.Interaction.applyEmailSignupCustomFields = function () {
1406            Bloomerang.Util.applyEmailSignupCustomFields(this, "Interaction");
1407            return this;
1408        };
1409        
1410        String.prototype.toUntypedValue = function() {
1411            return this.substring(this.indexOf('_') + 1);
1412        };
1413
1414        jQuery.validator.addMethod("currency", function (value, element, options) {
1415            return !value ||
1416                value
1417                  .replace("$", "")
1418                  .replace(".", "")
1419                  .split(",").join("")
1420                  .match(/^\d+$/g);
1421        }, "Not a valid currency");
1422
1423        jQuery.validator.classRuleSettings.currency = { currency: true };
1424
1425        jQuery.validator.addMethod("number", function (value, element, options) {
1426            return !value ||
1427                value
1428                  .replace(".", "")
1429                  .split(",").join("")
1430                  .match(/^\d+$/g);
1431        }, "Not a valid number");
1432
1433        jQuery.validator.classRuleSettings.number = { number: true };
1434        
1435        jQuery.validator.addMethod("validYear", function (value, element, options) {
1436            try {
1437                return (!value || value.match(/^[1-9]\d\d\d$/)) ? true : false;
1438            }
1439            catch (e) {
1440                return false;
1441            }
1442        }, function () { return "Must be a 4 digit year"; });
1443
1444        jQuery.validator.classRuleSettings.validYear = { validYear: true };
1445
1446        // Intercept form submission to validate then submit via API
1447        jQuery("#email-registration-form-container form").validate({
1448            submitHandler: function () {
1449                if (!Bloomerang.ValidateEmailSignupFormCaptcha()) {
1450                  return false;
1451                }
1452            
1453                // Restore proper callbacks in case there are multiple widgets on the page
1454                Bloomerang.Api.OnSubmit = Bloomerang.Widget.Email.OnSubmit;
1455                Bloomerang.Api.OnSuccess = Bloomerang.Widget.Email.OnSuccess;
1456                Bloomerang.Api.OnError = Bloomerang.Widget.Email.OnError;
1457                Bloomerang.Api.joinMailingList();
1458            }
1459        });
1460        
1461})(jQuery);
1462    };
1463    
1464                var startBloomerangLoad = function() {
1465                    if (window.bloomerangLoadStarted == undefined) {
1466                        window.bloomerangLoadStarted = true;
1467                        var script = document.createElement('script');
1468                        script.type = 'text/javascript';
1469                        script.src = 'https://crm.bloomerang.co/Content/Scripts/Api/Bloomerang-v2.js?nocache=1712081942';
1470                        document.getElementsByTagName('head')[0].appendChild(script);
1471                        waitForBloomerangLoad(function() { Bloomerang.Util.requireJQueryValidation(function() { insertForm145408(); })});
1472                    }
1473                    else {
1474                        waitForBloomerangLoad(function() { Bloomerang.Util.requireJQueryValidation(function() { insertForm145408(); })});
1475                    }
1476                };
1477
1478                var waitForBloomerangLoad = function(callback) {
1479                    if (typeof(Bloomerang) === 'undefined' || !Bloomerang._isReady) {
1480                        setTimeout(function () { waitForBloomerangLoad(callback) }, 500);
1481                    }
1482                    else {
1483                        if (true) {
1484                            callback();
1485                        } else {
1486                            window.bloomerangLoadStarted = undefined;
1487                            Bloomerang = undefined; // The version of Blomerang.js is not what we want. So blow it away and reload.
1488                            startBloomerangLoad();
1489                        }
1490                    }
1491                };
1492
1493                startBloomerangLoad();
1494</script>
1494</pre>
1495</div>
1496			</div>
1497			</div><div class="et_pb_column et_pb_column_1_5 et_pb_column_1_tb_footer  et_pb_css_mix_blend_mode_passthrough">
1498				
1499				
1500				
1501				
1502				<div class="et_pb_module et_pb_text et_pb_text_1_tb_footer  et_pb_text_align_left et_pb_bg_layout_dark">
1503				
1504				
1505				
1506				
1507				<div class="et_pb_text_inner"><h4>Navigation</h4></div>
1508			</div><div class="et_pb_module et_pb_text et_pb_text_2_tb_footer font-proxima  et_pb_text_align_left et_pb_bg_layout_dark">
1509				
1510				
1511				
1512				
1513				<div class="et_pb_text_inner"><p><a href="/">Home</a></p>
1514<p><a href="/who-we-are/">Who We Are</a></p>
1515<p><a href="/what-we-do/">What We Do</a></p>
1516<p><a href="/research/">Research</a></p>
1517<p><a href="/news-events/">Events</a></p>
1518<p><a href="/collaborations/">Collaborations</a></p>
1519<p><a href="/news-events/">News</a></p></div>
1520			</div>
1521			</div><div class="et_pb_column et_pb_column_1_5 et_pb_column_2_tb_footer  et_pb_css_mix_blend_mode_passthrough">
1522				
1523				
1524				
1525				
1526				<div class="et_pb_module et_pb_text et_pb_text_3_tb_footer  et_pb_text_align_left et_pb_bg_layout_dark">
1527				
1528				
1529				
1530				
1531				<div class="et_pb_text_inner"><h4>Resources</h4></div>
1532			</div><div class="et_pb_module et_pb_text et_pb_text_4_tb_footer font-proxima  et_pb_text_align_left et_pb_bg_layout_dark">
1533				
1534				
1535				
1536				
1537				<div class="et_pb_text_inner"><p><a href="http://ushersyndromesociety.org/ways-to-give/">Ways to Give</a></p>
1538<p><a href="https://www.ushersyndromesociety.org/financials/">Financials</a></p>
1539<p><a href="/contribute-blog/">Blog Contribution</a></p>
1540<p><a href="/privacy/">Privacy Policy</a></p>
1541<p><a href="/terms-and-conditions/">Terms &amp; Conditions</a></p></div>
1542			</div>
1543			</div><div class="et_pb_column et_pb_column_1_5 et_pb_column_3_tb_footer  et_pb_css_mix_blend_mode_passthrough">
1544				
1545				
1546				
1547				
1548				<div class="et_pb_module et_pb_text et_pb_text_5_tb_footer et_clickable  et_pb_text_align_left et_pb_bg_layout_dark">
1549				
1550				
1551				
1552				
1553				<div class="et_pb_text_inner"><h4>Contact</h4></div>
1554			</div><div class="et_pb_module et_pb_code et_pb_code_2_tb_footer">
1555				
1556				
1557				
1558				
1559				<div class="et_pb_code_inner"><p>
1560  <strong>Phone:</strong> 781.838.0204
1561</p> 
1562<p class="email-us">
1563<a href="/cdn-cgi/l/email-protection#64440a050a071d2411170c0116171d0a00160b0901170b070d01101d4a0b1603">
1564<strong>Email Us </strong>
1565</a>
1566<svg xmlns="https://www.w3.org/2000/svg" width="5.674" height="9.9" viewBox="0 0 5.674 9.9">
1567  <g id="Group_7815" data-name="Group 7815" transform="translate(1.061 1.061)">
1568    <path id="Path_9" data-name="Path 9" d="M.051,0,3.863,3.863,0,7.779" transform="translate(0 0)" fill="none" stroke="#fff" stroke-linecap="round" stroke-linejoin="round" stroke-width="1.5"/>
1569  </g>
1570</svg>
1571</p> </div>
1572			</div><div class="et_pb_module et_pb_code et_pb_code_3_tb_footer">
1573				
1574				
1575				
1576				
1577				<div class="et_pb_code_inner"><div class="social-icons">
1578    <a href="https://www.facebook.com/USHsociety/">
1579        <svg role="img" viewBox="0 0 24 24" xmlns="https://www.w3.org/2000/svg"><title>Facebook</title><path d="M9.101 23.691v-7.98H6.627v-3.667h2.474v-1.58c0-4.085 1.848-5.978 5.858-5.978.401 0 .955.042 1.468.103a8.68 8.68 0 0 1 1.141.195v3.325a8.623 8.623 0 0 0-.653-.036 26.805 26.805 0 0 0-.733-.009c-.707 0-1.259.096-1.675.309a1.686 1.686 0 0 0-.679.622c-.258.42-.374.995-.374 1.752v1.297h3.919l-.386 2.103-.287 1.564h-3.246v8.245C19.396 23.238 24 18.179 24 12.044c0-6.627-5.373-12-12-12s-12 5.373-12 12c0 5.628 3.874 10.35 9.101 11.647Z"/></svg>
1580    </a>
1581    <a href="https://www.instagram.com/ushsociety/">
1582        <svg role="img" viewBox="0 0 24 24" xmlns="https://www.w3.org/2000/svg"><title>Instagram</title><path d="M7.0301.084c-1.2768.0602-2.1487.264-2.911.5634-.7888.3075-1.4575.72-2.1228 1.3877-.6652.6677-1.075 1.3368-1.3802 2.127-.2954.7638-.4956 1.6365-.552 2.914-.0564 1.2775-.0689 1.6882-.0626 4.947.0062 3.2586.0206 3.6671.0825 4.9473.061 1.2765.264 2.1482.5635 2.9107.308.7889.72 1.4573 1.388 2.1228.6679.6655 1.3365 1.0743 2.1285 1.38.7632.295 1.6361.4961 2.9134.552 1.2773.056 1.6884.069 4.9462.0627 3.2578-.0062 3.668-.0207 4.9478-.0814 1.28-.0607 2.147-.2652 2.9098-.5633.7889-.3086 1.4578-.72 2.1228-1.3881.665-.6682 1.0745-1.3378 1.3795-2.1284.2957-.7632.4966-1.636.552-2.9124.056-1.2809.0692-1.6898.063-4.948-.0063-3.2583-.021-3.6668-.0817-4.9465-.0607-1.2797-.264-2.1487-.5633-2.9117-.3084-.7889-.72-1.4568-1.3876-2.1228C21.2982 1.33 20.628.9208 19.8378.6165 19.074.321 18.2017.1197 16.9244.0645 15.6471.0093 15.236-.005 11.977.0014 8.718.0076 8.31.0215 7.0301.0839m.1402 21.6932c-1.17-.0509-1.8053-.2453-2.2287-.408-.5606-.216-.96-.4771-1.3819-.895-.422-.4178-.6811-.8186-.9-1.378-.1644-.4234-.3624-1.058-.4171-2.228-.0595-1.2645-.072-1.6442-.079-4.848-.00
15827-3.2037.0053-3.583.0607-4.848.05-1.169.2456-1.805.408-2.2282.216-.5613.4762-.96.895-1.3816.4188-.4217.8184-.6814 1.3783-.9003.423-.1651 1.0575-.3614 2.227-.4171 1.2655-.06 1.6447-.072 4.848-.079 3.2033-.007 3.5835.005 4.8495.0608 1.169.0508 1.8053.2445 2.228.408.5608.216.96.4754 1.3816.895.4217.4194.6816.8176.9005 1.3787.1653.4217.3617 1.056.4169 2.2263.0602 1.2655.0739 1.645.0796 4.848.0058 3.203-.0055 3.5834-.061 4.848-.051 1.17-.245 1.8055-.408 2.2294-.216.5604-.4763.96-.8954 1.3814-.419.4215-.8181.6811-1.3783.9-.4224.1649-1.0577.3617-2.2262.4174-1.2656.0595-1.6448.072-4.8493.079-3.2045.007-3.5825-.006-4.848-.0608M16.953 5.5864A1.44 1.44 0 1 0 18.39 4.144a1.44 1.44 0 0 0-1.437 1.4424M5.8385 12.012c.0067 3.4032 2.7706 6.1557 6.173 6.1493 3.4026-.0065 6.157-2.7701 6.1506-6.1733-.0065-3.4032-2.771-6.1565-6.174-6.1498-3.403.0067-6.156 2.771-6.1496 6.1738M8 12.0077a4 4 0 1 1 4.008 3.9921A3.9996 3.9996 0 0 1 8 12.0077"/></svg>
1583    </a>
1584    <a href="https://www.linkedin.com/company/usher-syndrome-society/">
1585    <svg role="img" viewBox="0 0 24 24" xmlns="https://www.w3.org/2000/svg"><title>LinkedIn</title><path d="M20.447 20.452h-3.554v-5.569c0-1.328-.027-3.037-1.852-3.037-1.853 0-2.136 1.445-2.136 2.939v5.667H9.351V9h3.414v1.561h.046c.477-.9 1.637-1.85 3.37-1.85 3.601 0 4.267 2.37 4.267 5.455v6.286zM5.337 7.433c-1.144 0-2.063-.926-2.063-2.065 0-1.138.92-2.063 2.063-2.063 1.14 0 2.064.925 2.064 2.063 0 1.139-.925 2.065-2.064 2.065zm1.782 13.019H3.555V9h3.564v11.452zM22.225 0H1.771C.792 0 0 .774 0 1.729v20.542C0 23.227.792 24 1.771 24h20.451C23.2 24 24 23.227 24 22.271V1.729C24 .774 23.2 0 22.222 0h.003z"/></svg>
1586            <defs>
1587              <clipPath id="clip-path">
1588                <rect id="Rectangle_2152" data-name="Rectangle 2152" width="23.011" height="23" fill="#fff"/>
1589              </clipPath>
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1614				<div class="et_pb_text_inner"><h4>Support USH Research</h4></div>
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